Cover art for podcast Thriving in the Midst of Chaos: Parenting With Special Needs Kids

Thriving in the Midst of Chaos: Parenting With Special Needs Kids

100 EpisodesProduced by Jessica and Lewis TempleWebsite

Welcome to Thriving in the Midst of Chaos! This show is about surviving parenthood while having a child with special needs, while attempting to keep your self and your sanity intact. We share our experiences and discuss how we survived, what worked for us, and what didn’t work for us. This is a nonj… read more

1:23:55

Standing Strong For Your Child With Guest Jessica Barisano

Episode 58: Standing Strong For Your Child With Guest Jessica Barisano

In this episode, we discuss bumpy journeys to diagnosis and treatment, advocating for your children, and making lemonade out of lemons. Guest Jessica Barisano noticed differences in her son early on, but doctors thought it was just lactose intolerance. It took seeing numerous pediatricians over 3 years for him to be properly diagnosed with a genetic growth disorder. This diagnosis opened up a whole new world, and Trent, her son, saw a slew of different doctors. He was later also diagnosed with Autism, ADHD, developmental delays, speech delays, and vision impairment. Having a diagnosis was helpful for Jessica, as she knew her son had something going on and it was relieving and validating that her motherly instincts had been correct.

 

The first order of treatment was hormone injections, which he will need for the rest of his life. Trent hates the nightly injection but he deals with it as best he can. Once they had the diagnosis of autism, Trent started applied behavioral analysis, which then helped him to engage in occupational and speech therapies. He is currently getting all of his therapies through the school system, including behavioral therapy and speech therapy. Although getting diagnoses was difficult for Jessica and Trent, therapies went quite smoothly, since the therapists were in the same hospital system.

 

School, however, was a different story. It was the hardest challenge for Jessica and Trent. Trent started daycare at age 1. It was painful for Jessica to see neurotypical children meeting their milestones, while Trent was not. Whenever she picked her son up, Jessica was given behavioral reports. Trent was asked to leave several schools, including private schools, charter schools, and faith-based schools due to behaviors that were beyond his control. Schools were not willing to work with Trent and Jessica. Trent started public school partway through Kindergarten, and it has gone well for him ever since. However, his earlier experiences had really affected his self-esteem. The public school system was able to provide them the proper IEP for Trent and was able to provide him the supports he needed to be successful in school.

 

Jessica initially went with what the doctors said until her son was finally correctly diagnosed. Once he was, she realized how she could advocate for her son, and began to be a huge advocate for her son. She armed herself with preparation, research, and questions.  Jessica always recommends making sure to have the “right team,” meaning the best doctors and therapists for your child. This may mean going through different doctors and therapists, but it is imperative to find the right fit for your child. It is very important to find a connection with each doctor and therapist. Just know, it may take a few sessions with that person to know if it is a good fit or not. To find helpful resources, as your child’s therapists, as they have all the inside scoop on resources.

 

Links:

Collaborative Corner

Facebook

Instagram

Youtube

 

 

Email us if you have any questions or ideas!

We are now on instagram!

Check out updates on our website.

Follow Thriving on Twitter.

Check us out on Facebook and join our parent group!

Check out our podcast Facebook page!

 

 

Please subscribe to our podcast in the iTunes store, or wherever you find your podcasts, Leave us a 5-star review, to help us know what you like and what you don't like, and to make sure other like-minded people find support through this podcast.

Show Music:

Intro Outro: Intro Outro 2 by Mattias Lahoud under CC-BY 3.0 License (www.freesound.org)

Theme Song: 90s rock style by monkeyman535 under CC-BY 3.0 License (www.freesound.org)

Self Care Song: Green and Orange No Water by Duncan Alex under CC-BY 3.0 License (www.freesound.org)

Hosted by: Jessica Temple and Lewis Temple

Disclaimer: Our show is not designed to provide listeners with specific or personal legal, medical, or professional services or advice. Parents of children with health issues should always consult their health care provider for medical advice, medication, or treatment.

Copyright 2020 Jessica and Lewis Temple

Educational emoji reaction

Educational

Interesting emoji reaction

Interesting

Funny emoji reaction

Funny

Agree emoji reaction

Agree

Love emoji reaction

Love

Wow emoji reaction

Wow

Listen to Thriving in the Midst of Chaos: Parenting With Special Needs Kids

RadioPublic

A free podcast app for iPhone and Android

  • User-created playlists and collections
  • Download episodes while on WiFi to listen without using mobile data
  • Stream podcast episodes without waiting for a download
  • Queue episodes to create a personal continuous playlist
RadioPublic on iOS and Android
Or by RSS
RSS feed
https://fubarpod.libsyn.com/radiopublic

Connect with listeners

Podcasters use the RadioPublic listener relationship platform to build lasting connections with fans

Yes, let's begin connecting
Browser window

Find new listeners

  • A dedicated website for your podcast
  • Web embed players designed to convert visitors to listeners in the RadioPublic apps for iPhone and Android
Clicking mouse cursor

Understand your audience

  • Capture listener activity with affinity scores
  • Measure your promotional campaigns and integrate with Google and Facebook analytics
Graph of increasing value

Engage your fanbase

  • Deliver timely Calls To Action, including email acquistion for your mailing list
  • Share exactly the right moment in an episode via text, email, and social media
Icon of cellphone with money

Make money

  • Tip and transfer funds directly to podcastsers
  • Earn money for qualified plays in the RadioPublic apps with Paid Listens