Cover art for podcast Thriving in the Midst of Chaos: Parenting With Special Needs Kids

Thriving in the Midst of Chaos: Parenting With Special Needs Kids

100 EpisodesProduced by Jessica and Lewis TempleWebsite

Welcome to Thriving in the Midst of Chaos! This show is about surviving parenthood while having a child with special needs, while attempting to keep your self and your sanity intact. We share our experiences and discuss how we survived, what worked for us, and what didn’t work for us. This is a nonj… read more

1:10:53

Dawn Veselka's Story of Raising a Child With Mixed Connective Tissue Disease

Episode 95: Dawn Veselka's Story of Raising a Child With Mixed Connective Tissue Disease

In this episode, guest Dawn Veselka discusses her experience raising a daughter with a mixed connective tissue disorder. Her mix is juvenile arthritis, scleroderma, Raynaud’s and dermatomyositis. Sadie’s triggers are exposure to viruses, sunlight, and certain foods. They determined her triggers through trial and error. Her daughter, Sadie, started showing signs of her condition at 18 months. She started showing trunk rashes, stopped being able to walk, not eating much due to jaw pain, wouldn’t hold a spoon or pencil, and  ate with her fingers. Dawn tried to find a diagnosis for her, but the doctors didn’t think she needed to get testing for Sadie. Eventually, she couldn’t move or get off the floor. She was told that she was just a worried first time mom, was told that she was putting her child through horrible tests for herself and not her child. She had to research things on the internet to find a proper doctor, and then Sadie was properly tested to find her actual diagnoses. Dawn recommends listening to your parenting instincts.

 

To help Sadie, they tried a lot of different treatments, including medications, shots, IVIG, infusions, anti-inflammatory diets, chiropractic, and acupuncture. It took a lot of time and treatments for Sadie to be able to be more independent with activities, physically. Due to discrimination from others, Dawn and Sadie decided to do homeschooling, which has worked very well for Sadie. Dawn heard so many stories of teacher’s discrimination against children with chronic illnesses. Sadie did a lot of co-ops to help with school. Although Dawn  didn’t want Sadie to have to use a wheelchair, Sadie greatly increased her independence and abilities when using a wheelchair, so she started using one.

 

Dawn recommends making family a priority. Sadie prioritizes her energy and plans in down time or recovery time for afterward. Dawn has advocated for Sadie by standing up for her, getting involved in foundations, teaching Sadie to follow her internal voice, and giving  up expectations others put on her. Sadie has found kind and empathetic friends who are really compassionate. Dawn  taught Sadie how to stand up for herself. They use video chats to help Sadie be social when she doesn’t feel well enough to get together in person. Sadie is finally in a place where her condition is very stable.

 

Dawn uses social supports by talking with other medical moms and  running a charity. To advocate for yourself, never give up, and don’t search for advice from people who haven’t been through it because they won’t understand.

 

Chronic Warriors Collective 1

Chronic Warriors Collective 2

Body Check Journal

LinkedIn

Instagram Dawn

Instagram Chronic Warriors Collective

 

Links:

 

Email us if you have any questions or ideas!

We are now on instagram!

Check out updates on our website.

Follow Thriving on Twitter.

Check us out on Facebook!

We are also on Pinterest!

 

 

Please subscribe to our podcast in the iTunes store, or wherever you find your podcasts, Leave us a 5-star review, to help us know what you like and what you don't like, and to make sure other like-minded people find support through this podcast.

Show Music:

Intro Outro: Intro Outro 2 by Mattias Lahoud under CC-BY 3.0 License (www.freesound.org)

Theme Song: 90s rock style by monkeyman535 under CC-BY 3.0 License (www.freesound.org)

Self Care Song: Green and Orange No Water by Duncan Alex under CC-BY 3.0 License (www.freesound.org)

 

Hosted by: Jessica Temple and Lewis Temple

 

Disclaimer: Our show is not designed to provide listeners with specific or personal legal, medical, or professional services or advice. Parents of children with health issues should always consult their health care provider for medical advice, medication, or treatment.

Copyright 2021 Jessica Temple

Educational emoji reaction

Educational

Interesting emoji reaction

Interesting

Funny emoji reaction

Funny

Agree emoji reaction

Agree

Love emoji reaction

Love

Wow emoji reaction

Wow

Listen to Thriving in the Midst of Chaos: Parenting With Special Needs Kids

RadioPublic

A free podcast app for iPhone and Android

  • User-created playlists and collections
  • Download episodes while on WiFi to listen without using mobile data
  • Stream podcast episodes without waiting for a download
  • Queue episodes to create a personal continuous playlist
RadioPublic on iOS and Android
Or by RSS
RSS feed
https://fubarpod.libsyn.com/radiopublic

Connect with listeners

Podcasters use the RadioPublic listener relationship platform to build lasting connections with fans

Yes, let's begin connecting
Browser window

Find new listeners

  • A dedicated website for your podcast
  • Web embed players designed to convert visitors to listeners in the RadioPublic apps for iPhone and Android
Clicking mouse cursor

Understand your audience

  • Capture listener activity with affinity scores
  • Measure your promotional campaigns and integrate with Google and Facebook analytics
Graph of increasing value

Engage your fanbase

  • Deliver timely Calls To Action, including email acquistion for your mailing list
  • Share exactly the right moment in an episode via text, email, and social media
Icon of cellphone with money

Make money

  • Tip and transfer funds directly to podcastsers
  • Earn money for qualified plays in the RadioPublic apps with Paid Listens