Six months after Karen Aiach’s daughter Ornella was born, she was diagnosed with Sanfilippo syndrome, a rare genetic disorder. Doctors told Karen her daughter would likely live for just over a decade. Left with no option, she created one herself. After only three weeks of receiving the news, and with no medical background, Karen cofounded Lysogene, a biotech company targeting the syndrome. In this episode, she reminds us why “no” or “never” is only the start of the conversation.
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