Six months after Karen Aiach’s daughter Ornella was born, she was diagnosed with Sanfilippo syndrome, a rare genetic disorder. Doctors told Karen her daughter would likely live for just over a decade, and there was nothing Karen could do about it. Left with no option, she created one herself.
After only three weeks of receiving the news, and with no medical background, Karen cofounded Lysogene, a biotech company targeting the syndrome. In this episode, she reminds us why “no” or “never” is only the start of the conversation.