We talk to rare disease experts about treatments, trials, and new developments, and rare disease patients share their experiences and advice for staying positive in the face of diagnosis. Learn more about the RareShare.org community, and how you can get involved. Get in touch if you are an expert or… read more
Being born with, and growing up with a rare disease means you don’t necessarily know any other way of life. This month we spoke with 23-year-old …
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