#thatkimberly #caregiversstories #caregivereducation
In this interview, Kimberly Scott interviews Rachel Nusbaum a Certified Genetic Counselor and founder of Orchid Story, LLC. Rachel shared her story on what it is like to take care of her mom while taking care of her kids and the impact it had on their lives. Her mother was diagnosed 10 years ago with what is now called Posterior Cortical Atrophy (PCA), also known as Benson's syndrome. It is a form of dementia which refers to gradual and progressive degeneration of the outer layer of the brain (the cortex) in the part located in the back of the head (posterior). She highlighted a moment where she and her mother had a talk about her 8-year-old son. It took her by surprise for her mother voiced out her pain about how her son was becoming distant to her. This was something she noticed too. Though the disease took a toll on her mother’s total well-being, what Rachel realized at that moment was her mother’s core and the truest essence of herself is still the same even if all the former capability is slowly get stripped away. This is what we often forget but we shouldn’t forget to remind each family member, including the little ones these little things. Though this might be a tough ordeal, especially with children as long as there are compassion and constant communication, a harmonious relationship can still be achieved. Listen to the whole interview for Kimberly and Rachel talked so many things about how to handle the young members in the family. It will make you tear up a little for these two daughters who are both battling to maintain the life that they want to have for themselves and for the loved ones who are diagnosed with dementia.
Connect with Rachel : IG: https://www.instagram.com/theorchidstory/
Podcast: https://www.orchidstory.com/podcast (iTunes)
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