Cover art for podcast I'm Aware That I'm Rare: the phaware® podcast

I'm Aware That I'm Rare: the phaware® podcast

377 EpisodesProduced by phaware global associationWebsite

I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from memb… read more

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Episode 374 - Evelyn Keltgen

July 4th, 2022

5:35

In this episode, pediatric pulmonary hypertension patient, Evelyn Keltgen, discusses being diagnosed with PH at 6 weeks old. At age 9, Evelyn learned …

Episode 373 - Gary Bruce

June 27th, 2022

6:35

In this episode, pulmonary hypertension patient, Gary Bruce, discusses how meeting and marrying another PH patient changed the trajectory of his life …

Episode 372 - Gerry Langan

June 20th, 2022

13:02

In this episode, Gerry Langan (@itsgerrylangan), pulmonary hypertension and heart failure patient advocate, discusses how sharing her story and …

Episode 371 - Shavini Fernando

June 13th, 2022

12:36

In this episode, Shavini Fernando discusses her severe pulmonary hypertension diagnosis due to Eisenmenger's Syndrome. After facing multiple cardiac …

Episode 370 - Catherine Falardeau

June 8th, 2022

9:09

In this episode, scleroderma patient, Catherine Falardeau, discusses her road to diagnosis and how a right heart catheterization, led to also being …

Episode 369 - Amanda Howard

April 4th, 2022

9:01

In this episode, pulmonary hypertension caregiver, Amanda Howard, discusses her 17-year-old daughter Abby's lifelong battle with PH after being …

Episode 368 - KC Yates

March 28th, 2022

9:13

In this episode, pulmonary hypertension patient, KC Yates, discusses battling COVID-19 twice during the pandemic and how she relies on her …

Episode 367 - Dawn Meador

March 14th, 2022

11:25

In this episode, long-term pulmonary hypertension patient, Dawn Meador, discusses navigating her PH during a pandemic as well as why she and her …

Episode 366 - Mary Hale

March 7th, 2022

9:52

In this episode, pulmonary hypertension patient, Mary Hale discusses the power of positivity in life post PAH diagnosis.

Learn more about pulmonary …

Episode 365 - Tarya Morel

February 28th, 2022

10:45

In this episode, Canadian pulmonary hypertension patient, Tarya Morel discusses parenting in times of a pandemic.

Learn more about pulmonary …

Episode 364 - Sandeep Sahay, MD and Jordin Rice, RN

November 29th, 2021

14:37

In this episode, pulmonologist Sandeep Sahay, MD and Jordin Rice, RN from Houston Methodist Lung Center discuss a nurse's role in informing and …

Episode 363 - Kayla Dunlop

November 22nd, 2021

10:11

Kayla Dunlop is a pulmonary hypertension patient from Southern California.

In this episode, Kayla discusses being born with a rare condition called …

Episode 362 - Doug Evans

November 15th, 2021

11:59

Doug Evans is a Pulmonary Hypertension patient from Florida.

In this episode, Doug discusses his time in the military as a bomb loader, why he had to …

Episode 361 - Derek Henderson

November 8th, 2021

7:03

Derek Henderson is a #CTEPH patient from Toronto, Canada.

In this episode Derek discusses is road to diagnosis with a rare form of pulmonary …

Episode 360 - Kelly Lynch

November 1st, 2021

9:10

Kelly Lynch is a pulmonary hypertension patient from San Francisco. 

In this episode, Kelly discusses her parasitic twin, battling depression and …

I'm Aware That I'm Rare: the phaware® podcast Trailer

January 15th, 2021

1:59

Are you #phaware?  

EVERYBODY HAS A STORY. WHAT'S YOURS?

phaware® wants to share your pulmonary hypertension story with our engaged global audience. …

Episode 359 - Raymond Benza, MD

December 28th, 2020

9:45

Dr. Raymond Benza is the Director for the Division of Cardiovascular Medicine at “THE” Ohio State University. He has been in practice for more than …

Episode 358 - Roz Jones

December 21st, 2020

11:40

Rosalind Marshall-Jones is an innovative speaker with more than 15 years of experience in the caregiving industry. She is a seasoned health care provider, who runs Jacksonville’s Best Caregivers, an organization that …

Episode 356 - David Harris

December 14th, 2020

11:14

David F. Harris founded Insight & Measurement and provides research, training and speaking to the industry. 



In this episode, he discusses the qualitative and quantitative work that he conducts with PAH patients, …

Episode 355 - PAH Today: The Pathways To Treatment

December 9th, 2020

22:50

SPECIAL EDITION: The Pathways To Treatment

The PAH Initiative and United Therapeutics are excited to bring you the PAH Today National Broadcast …

Episode 354 - Sarah Sizemore

December 7th, 2020

7:05

PAH patient Sarah Sizemore discusses being diagnosed with pulmonary hypertension at a young age in Denver, her family's decision to move from …

Episode 353 - PAH Today: Shape the Future

December 2nd, 2020

13:04

SPECIAL EDITION: How Decisions Today Can Shape the Future

The PAH Initiative and United Therapeutics are excited to bring you the PAH Today National …

Episode 352 - Krosby Myers, BSN, RN

November 30th, 2020

8:05

Krosby Myers is a registered Nurse at UC San Diego Health System.  Though she works in their surgical oncology unit, Krosby had no idea that UCSD was …

Episode 351 - PAH Today: Beyond the Basics

November 25th, 2020

20:11

SPECIAL EDITION: Beyond the Basics

The PAH Initiative and United Therapeutics are excited to bring you the PAH Today National Broadcast Series. This …

Episode 350 - Natalia Maeva

November 23rd, 2020

8:09

Bulgarian pulmonary hypertension patient Natalia Maeva is a founding member and current President of the Bulgarian Society of the patients with …

Episode 349 - Jessica Romero

November 16th, 2020

7:14

Baby Jessica Romero was born October 26, 1983 in Denver, Colorado. Jessica was born 3 months premature, weighing one pound, 7 ounces. The Rocky …

Episode 348 - George B. Mallory Jr., MD

November 9th, 2020

14:38

George B. Mallory, MD is a pediatric pulmonologist at Texas Children's Hospital. In 2001, he joined the Baylor College of Medicine pediatric faculty …

Episode 347 - Erica Huntzinger

November 2nd, 2020

13:33
Erica Huntzinger, MPH is an Associate Producer of the phaware® podcast series.   In this episode she discusses what it's like to be the daughter and …

Episode 346 - Jamie and Diana Cruz - Race Against PH

October 26th, 2020

9:39

Jaime Cruz is a caregiver to his daughter, Diana, who is this year's Pediatric Courage Award Winner of the 20th Annual Virtual Race Against PH 5K/Fun Run, taking place November 1st, 2020.

In this episode, they discuss …

Episode 345 - Roham Zamanian, MD - Race Against PH

October 19th, 2020

12:19

Roham Zamanian, MD is the Director of the Adult Pulmonary Hypertension (PH) Program at Stanford University Medical Center.

In this episode, he …

Episode 344 - Lindsey and Paige Doolan - Race Against PH

October 12th, 2020

11:44

Lindsey Doolan is a caregiver to her daughter, Paige, who is a pediatric pulmonary hypertension patient. 

In this episode, they discuss Paige's PH …

Episode 343 - Yon Sung, MD - Race Against PH

October 5th, 2020

11:40

Yon Sung, MD is a Clinical Assistant Professor of Pulmonary & Critical Care at Stanford University School of Medicine and specializes in the care …

Episode 342 - Emma Olson Jackson, MS, ARNP

September 28th, 2020

10:26

Emma Olson Jackson is a Pediatric Nurse Practitioner at Seattle Children's Hospital. In this episode, she discusses her history in helping develop …

Episode 341 - Sheila Gujrathi, MD and Larry Zisman, MD phaware podcast

September 14th, 2020

10:10

Sheila Gujrathi, MD and Larry Zisman, MD of Gossamer Bio discuss the development of an investigational new treatment for pulmonary arterial …

Episode 340 - Ryan D. Coleman, MD

August 31st, 2020

12:10

Ryan D. Coleman, MD specializes in pediatric critical care and pulmonary hypertension at Texas Children's Hospital. Dr. Coleman is also the medical …

Episode 339 - Lisa Knight Skeeters

August 24th, 2020

5:57

Lisa Knight Skeeters was born with heart defects and had multiple surgeries through her younger years. 14 years ago, she developed pulmonary …

Episode 338 - Jennifer Stone

August 17th, 2020

6:45

Jennifer Stone is a school teacher from the Los Angeles Area. She was diagnosed with PAH in July 2011. In this episode, she discusses how she is …

Episode 337 - Sarah Mironczuk

August 10th, 2020

7:55

Pediatric pulmonary hypertension caregiver Sarah Mironczuk discusses her daughter Bee's road to a PAH diagnosis, grappling with depression and the …

Episode 336 - Nidhy P. Varghese, MD

August 3rd, 2020

9:14

Nidhy P. Varghese, MD is an Assistant Professor of Pediatrics and the Medical Director of the pediatric pulmonary hypertension program from Texas …

Episode 335 - Elise Whalen, APRN

July 27th, 2020

7:19

Elise Whalen is a pediatric Nurse Practitioner from Texas Children's Hospital’s Pulmonary Hypertension program. In this episode, she discusses her …

Episode 334 - Melanie Brown

July 20th, 2020

9:16

Pulmonary Hypertension Patient, Melanie Brown discusses her complicated road to a proper PH diagnosis, counseling to cope with not being able to get …

Episode 333 - Kathleen Grady

July 13th, 2020

8:44

Pulmonary Hypertension Patient, Kathleen Grady discusses her road to diagnosis, her optimistic view on her rare disease and how she navigates the …

Episode 332 - Allison Wells

July 6th, 2020

8:14

Pulmonary Hypertension Patient Allison Wells is a substitute teacher from Gander Newfoundland. In this episode, Allison discusses self-diagnosing her …

Episode 331 - KC Yates

June 29th, 2020

7:30

Pulmonary hypertension patient, KC Yates discusses her PH diagnosis, thoughts on motherhood, and the art of listening to what her body is telling her.

Episode 330 - Alex Minnick

June 22nd, 2020

10:56

Alex Minnick discusses his role as a pulmonary hypertension caregiver to his father, PH patient, Dan Minnick, over the past decade in this Father's …

Episode 329 - Hilary DuBrock, MD

June 15th, 2020

7:39

Dr. Hilary DuBrock is an Assistant Professor of Medicine with joint appointments in Pulmonary and Critical Care Medicine and Cardiovascular Medicine …

Episode 328 - Michael Laughlin

June 1st, 2020

9:24

Michael Laughlin was diagnosed with severe Pulmonary Hypertension in January 2018. He started experiencing shortness of breath in 2016 while working …

Kevin Paskawych phaware podcast Ep 137 encore

May 25th, 2020

7:22

ENCORE EDITION: Kevin Paskawych is a pulmonary hypertension patient and car racing enthusiast from Ohio. Kevin discusses his dream to drive PH …

Episode 327 - Jane Price

May 18th, 2020

16:55

Jane Price's daughter, Connie was diagnosed with pulmonary hypertension at age 3. At age 4, she was the 2nd child (the first girl) to ever have the …

Episode 326 - Susan Summerfield

May 11th, 2020

5:02

COVID-19 SPECIAL EDITION:  Susan Summerfield is a pulmonary hypertension patient and retired airline stewardess. In this episode, Susan discusses her …

Episode 325 - Maleen Fischer

May 4th, 2020

8:47

COVID-19 SPECIAL EDITION: Maleen Fischer was diagnosed with pulmonary hypertension at age 3. Two decades later, Maleen discusses battling coronavirus …

Episode 324 - Laura Rivera

April 27th, 2020

7:41

COVID-19 SPECIAL EDITION: Laura Rivera has contended with Pulmonary Hypertension for more than 24 years. In this episode, Laura details her recent 5 …

Episode 323 - Patricia George, MD - COVID19

April 23rd, 2020

16:03

BREAKING: COVID-19 SPECIAL EDITION:  Patricia George, MD is a PH pulmonologist and co-director of the pulmonary hypertension program at National …

Episode 322 - Justin Gulliver

April 20th, 2020

10:25

COVID-19 SPECIAL EDITION: 
Justin Gulliver is a pulmonary hypertension patient from New Zealand as well as a health social worker primarily working …

Episode 321 - Kaarina Wilson

April 13th, 2020

6:44

COVID-19 SPECIAL EDITION: Kaarina Wilson is a self-described Canadian patient, leader, chronic illness defeater from Canada. She discusses her PH, CTEPH, and scleroderma diagnosis as well as the road to lung transplant, …

UCSD COVID-19 and PAH

April 6th, 2020

41:48

COVID-19 SPECIAL EDITION: Timothy Fernandes, MD and Demos Papamatheakis, MD along with Sheryl Wu, Pharm D, Cynthia Rodriguez, RN & Sandee …

Episode 319 - Avi Halpert

March 30th, 2020

11:39

Avi Halpert is Vice President, Corporate Real Estate at United Therapeutics. In this episode, Avi discusses his role of overseeing the development of …

Episode 318 - Paula Menezes

March 23rd, 2020

11:12

Paula Menezes was a caregiver of her mother, Maria Cristina, who was diagnosed with Pulmonary Hypertension in Jan 2005. Maria passed away in 2007. …

Episode 317 - Shanna Hiemstra

March 19th, 2020

9:07

South African Pulmonary hypertension caregiver, Shanna Hiemstra is captain of Team PH South Africa. Since Shanna's mother Sandra was diagnosed, …

Episode 316 - Roham Zamanian, MD COVID-19

March 16th, 2020

7:05

SPECIAL EDITION: Roham Zamanian, MD from Stanford University Medical Center discusses Coronavirus (COVID-19) and gives Specific Advice for the …

Episode 315 - Victor Tapson, MD COVID-19

March 12th, 2020

12:21

SPECIAL EDITION: Victor F. Tapson, MD from Cedars-Sinai discusses coronavirus (COVID-19) and how it might impact Pulmonary Hypertension Patients.

Episode 314 - Ashley Belle

March 9th, 2020

8:00

Pulmonary hypertension patient Ashley Belle discusses her diagnosis at age 27, getting out of an abusive relationship and embarking on a career as a …

Episode 313 - Vinicio de Jesus Perez, MD

March 5th, 2020

11:01

In this episode, Dr. Perez discusses the diagnostic evaluation of the patient with pulmonary hypertension at the clinic. Vinicio de Jesus Perez, MD …

Episode 312 - Vinicio de Jesus Perez, MD

March 2nd, 2020

12:55

In this episode, Dr. Perez discusses ongoing clinical studies in #pulmonaryhypertension and what that means for practitioners & patients with PH. …

Episode 311 - Lindsay Thurman

February 27th, 2020

6:35

Lindsay Thurman is an idiopathic pulmonary arterial hypertension patient diagnosed in 2008. Lindsay teaches math full time at a high school in …

Episode 310 - Laura Rhee, MD

February 24th, 2020

7:54

Dr. Laura Rhee is a senior associate consultant and instructor in medicine at Mayo Clinic in Rochester, Minnesota. Dr. Rhee is currently the …

Episode 309 - Carys and Paisley Dempsey

February 20th, 2020

4:20

Sisters Paisley Dempsey (10) and Carys Dempsey (11) discuss their mother Nicole’s PH diagnosis and their roles as caregivers. Nicole served as a PHA …

Episode 308 - Alex Cowie

February 17th, 2020

14:35

Alex Cowie lives in the South West Coast of Scotland, UK with his partner Jo. Alex was diagnosed with Hereditary Pulmonary Arterial Hypertension in …

Episode 307 - Cheryl Wegener

January 30th, 2020

3:07

We are heartbroken that our friend, Madison Wegener, lost her battle with PH on January 19, 2020. In this episode, Madison 's mother, Cheryl discusses the importance of early diagnosis, the impact PH has on the entire …

Episode 306 - Madison Wegener

January 27th, 2020

2:57

We are heartbroken that our friend, Madison Wegener, lost her battle with PH on January 19, 2020. In this episode, Madison discusses the importance of awareness, research and why she loves PH Conference.

Please join the …

Episode 305 - Harold Palevsky, MD

December 5th, 2019

21:22

Harold I. Palevsky, MD is a Professor of Medicine at the Perelman School of Medicine at the University of Pennsylvania and the Chief of Pulmonary, …

Episode 304 - Dale Dedrick

December 2nd, 2019

8:02

Dale Dedrick is a retired orthopedic surgeon who was diagnosed with lupus and pulmonary hypertension. In this episode, Dale discusses how her illness …

Episode 303 - Raymond Benza, MD

November 28th, 2019

12:27

Dr. Raymond Benza is a cardiologist in Pittsburgh, Pennsylvania and is affiliated with multiple hospitals in the area, including Alle-Kiski Medical …

Episode 302 - Dawn Meador

November 25th, 2019

10:33

In this episode long-term pulmonary hypertension patient, Dawn Meador discusses PH diagnosis as well as her decision to adopt a child, post dx with …

Episode 301 - Hall Skåra

November 21st, 2019

5:43

Hall Skåra is a pulmonary hypertension patient from Norway. He became part of PHA Europe’s staff after his diagnosis. He has helped develop their …

Episode 300 - Iain Hess

November 18th, 2019

15:03

In our 300th episode, Iain Hess discusses his lifesaving double-lung transplant he received two years ago on January 17, 2017. Iain is a former …

Episode 299 - Wendy Gin-Sing, RN

November 14th, 2019

6:09

Wendy Gin-Sing RN, MSc, MRes, is an advanced nurse practitioner with the Pulmonary Hypertension Service at the Hammersmith Hospital in London. In …

Episode 298 - Michelle Sweitzer

November 11th, 2019

8:31

In this episode, pulmonary hypertension patient, Michelle Sweitzer discusses her illness and why she chose to adopt.

Learn more about pulmonary …

Episode 297 - Elsa Garza, DNP

November 7th, 2019

5:46

Elsa Garza, DPN specializes in Pulmonary Medicine and has sub-specialized in Pulmonary Hypertension since 2009. Caring for patients with Pulmonary …

Episode 296 - Connie Siskowski, RN, PhD

November 4th, 2019

12:37

Connie Siskowski, RN, PhD from American Association of Caregiving Youth discusses youth caregivers who sacrifice their education, health, well-being and childhood to provide care for ill or disabled family members.

Episode 295 - Michael Keller, MD

October 31st, 2019

8:46

Michael Keller, MD is a Pulmonologist and Pulmonary Hypertension specialist with Suburban Lung Associates in Elk Grove Village, IL. He is medical …

Episode 294 - Hilary DuBrock, MD

October 28th, 2019

7:56

Dr. Hilary DuBrock is an Assistant Professor of Medicine with joint appointments in Pulmonary and Critical Care Medicine and Cardiovascular Medicine …

Episode 293 - Ryan Bonvillain, PhD Kelly Guthrie, MS

October 24th, 2019

13:50

Ryan W. Bonvillain, PhD is the Senior Manager for Tissue Engineering, Research Regenerative Medicine at United Therapeutics Corporation. Kelly …

Episode 292 - Richard Pietroski

October 21st, 2019

8:39

Richard Pietroski is President of Lung Bioengineering at United Therapeutics Corporation. Richard discusses the advancements his organization has …

Episode 291 - Patti Flanagan

October 17th, 2019

10:25

PH and Scleroderma patient, Patricia Flanagan discusses the bumpy roller coaster ride that led to her diagnosis and life with left heart disease.

Episode 290 - Taryn Petry

October 14th, 2019

3:09

Pediatric pulmonary Hypertension patient, Taryn Petry talks about her passion for Irish dancing and how she grapples with restricting herself in …

Episode 288 - Theresa Lickman

October 8th, 2019

3:32

Caregiver, Theresa Lickman discusses her husband Bill's diagnosis and the importance of living life within the limits of PH.

Learn more about …

Episode 287 - Bill Lickman

October 3rd, 2019

3:58

Pulmonary Hypertension patient and military veteran, Bill Lickman discusses his road to diagnosis and the importance of great caregiver support.

Episode 286 - Marie and Zach Rand

September 30th, 2019

15:44

Co-founder and Managing Director of phaware global association®, Marie Rand and her son Zach discuss breathless on Broadway® an event that honors the …

Episode 285 - Terry Jones

September 26th, 2019

2:56

PH Patient, Terry Jones on being a patient and caregiver and why research is important for the pulmonary hypertension community.

Learn more about …

Episode 284 - Chuck Thompson

September 23rd, 2019

3:54

Pulmonary Hypertension caregiver Chuck Thompson discusses the importance of support groups for PH patients like his wife, Barbara.

Learn more about …

Episode 283 - Alicia Adriana Kubes

September 19th, 2019

5:49

Sisters Alicia and Adriana Kubes discuss Alicia's pulmonary hypertension diagnosis and Adriana's role as a caregiver and ways they are facing this …

Episode 282 - Dora Erdelyi

September 16th, 2019

5:36

Hungarian Ex-PH patient, Dora Erdelyi, discusses her double lung transplant and how patients in Budapest grapple with PH.

Learn more about pulmonary …

Episode 281 - Vicki Banos

September 12th, 2019

2:59

Pulmonary hypertension patient Vicki Banos discusses her PH diagnosis.

Learn more about pulmonary hypertension trials at

Episode 280 - Yon Kyung Sung, MD

September 9th, 2019

6:09

Yon Sung, MD is a Clinical Assistant Professor of Pulmonary & Critical Care at Stanford University School of Medicine and specializes in the care …

Episode 279 - Michelle Johnson

September 5th, 2019

8:59

Native American PAH patient Michelle Johnson describes her long road to diagnosis. Michelle's journey was complicated due to her cultural customs and …

Episode 278 - Barbara Barry-Nishanian

September 2nd, 2019

6:15

Pulmonary Arterial Hypertension patient Barbara Barry-Nishanian discusses her long road to diagnosis and adjusting to a different life with PAH.

Episode 277 - Mary Jan Hicks

August 29th, 2019

7:11

Mary Jan Hicks discusses her daughter Meaghan's PH diagnosis and road to double-lung & heart transplant.

Learn more about pulmonary hypertension …

Episode 276 - Stephanie Bachelder

August 26th, 2019

5:31

Pulmonary Hypertension patient Stephanie Bachelder on being diagnosed with a terminal illness, the power of combination therapy and why she feels she …

Episode 275 - Cathy Downard

August 22nd, 2019

6:12

Lupus and Pulmonary Hypertension patient Cathy Downard discusses her rare disease diagnosis and how she battles depression by helping kids in her the …

Episode 274 - Shannin Strom-Henry

August 19th, 2019

12:20

Pediatric PH Caregiver Shannin Strom-Henry discusses her daughter Zoe's congenital diaphragmatic hernia and pulmonary hypertension diagnosis. She …

Episode 273 - Carl Hicks

August 15th, 2019

12:45

Carl Hicks is a beloved member of the pulmonary hypertension community and tireless advocate for patients and caregivers alike. Carl is a …

Episode 272 - Suzanne Ransom

August 12th, 2019

4:23

Pediatric PH Caregiver Suzanne Ransom on advocating for her daughter's rare disease diagnosis and adjusting to her "level of hard."

Learn more about …

Episode 271 - Lauren Janzen

August 8th, 2019

6:18

Pulmonary hypertension patient and nurse Lauren Janzen on the unique perspective of being both a patient and a RN working on the PH floor she was …

Episode 270 - Linda Gates

August 5th, 2019

6:13

Pulmonary hypertension patient Linda Gates on being diagnosed at age 55 and how this rare disease impacted her retirement plans.

Learn more about …

Episode 269 - Lorraine Bourne

August 1st, 2019

6:00

Pulmonary hypertension patient Lorraine Bourne on the frustration in getting a proper PH diagnosis and the importance of connecting with other …

Episode 268 - Rochelle Earp

July 29th, 2019

5:14

Pulmonary hypertension patient, Rochelle Earp discusses the importance of early diagnosis and the importance of in-person and online support in …

Episode 267 - Sara Cates

July 25th, 2019

8:46

Single Mom, Sara Cates discusses being diagnosed with pulmonary hypertension and how juicing and a whole food plant based diet helped change her …

Episode 266 - Joann Volpe

July 22nd, 2019

4:17

Long-term pulmonary hypertension patient, Joann Volpe discusses her road to diagnosis 25 years ago, being put on a clinical trial for the first PH …

Episode 265 - Jennifer Garigen

July 18th, 2019

5:24

Pediatric pulmonary hypertension caregiver Jennifer Garigen discussed her son Tyler's PH diagnosis, the importance of a PH Care Center and offers …

Episode 264 - Darlene Monday

July 15th, 2019

6:50

Patient Darlene Monday discusses how she came to terms with her pulmonary hypertension diagnosis, her fear of dying and what keeps her going. 

Learn …

Episode 263 - Kori Ascher, DO

July 11th, 2019

7:20

Dr. Kori Ascher was born and raised in upstate NY then relocated to South Florida for medical school, residency, and fellowship. Dr. Ascher founded

Episode 262 - Karen Reams

July 8th, 2019

5:57

CTEPH patient Karen Reams discusses the elation of the possibility of a cure for her PH and the devastation in being told her blot clots are too …

Episode 261 - Debra Hines-Bruce

July 4th, 2019

8:40

Pulmonary hypertension patient, Debra Hines-Bruce discusses her PH diagnosis and how a chance encounter at a patient conference turned into a …

Episode 260 - Rebecca Hamilton

July 1st, 2019

10:18

Rebecca Hamilton was diagnosed with portopulomnary hypertension in 2015. She details her multi-year court battle for disability benefits. 

Learn more …

Episode 259 - Tina Sudbury

June 27th, 2019

4:25

Patient Tina Sudbury discusses her pulmonary hypertension diagnosis and how she tackles depression and isolation battling this rare disease.

Learn …

Episode 258 - Denise Momburg

June 24th, 2019

3:39

Patient Denise Momburg discusses her pulmonary hypertension diagnosis, being misdiagnosed with asthma and how she faces her new normal.

Learn more …

Episode 257 - Sherlyn Mersiovsky

June 20th, 2019

7:14

Pulmonary hypertension patient Sherlyn Mersiovsky talks about her long road to diagnosis and how PH support groups helped her cope with her rare …

Episode 256 - Candace Malson, RN

June 17th, 2019

5:46

Candace Malson, DNP, R.N., ANP-BC, is an adult primary care nurse practitioner in Lake of the Ozarks area of Missouri. She is currently writing a …

Episode 255 - Tiffany Olka, RN

June 13th, 2019

4:24

Tiffany Olka, RN gives an overview of the University of Minnesota Medical Center's Center for Pulmonary Vascular Disease and Right Heart Failure.

Episode 254 - Evelyn Melendez

June 10th, 2019

7:04

Pulmonary hypertension patient Evelyn Melendez discusses being diagnosed as a teenager. She details how she came to terms with not being able to …

Episode 253 - Mack Lester

June 6th, 2019

3:58

PH patient Mack Lester has been on 10 liters of continuous oxygen for over 12 years. He's a proud member of the PH Men's PHight Club, who is in the process of awaiting a double lung transplant.

Learn more about …

Episode 252 - Nola Martin

June 3rd, 2019

8:26

Pulmonary Hypertension and Scleroderma patient Nola Martin discusses her road to diagnosis and the importance of support groups and seeing a PH …

Episode 251 - Shannon O'Donnell

May 30th, 2019

6:03

Shannon O'Donnell was diagnosed with pulmonary hypertension at age 6.  Shannon recorded this interview on the day of her college graduation. She …

Episode 250 - PH Awareness Film

May 27th, 2019

20:22

In our 250th episode, phaware.global co-founders Steve Van Wormer and Marie Rand reveal a "breathtaking" new PH Awareness short film project with the film's director and producer, Elisabeth White from RooAndKanga …

Episode 249 - Raele Robison

May 23rd, 2019

4:14

PhD student Raele Robison discusses her scleroderma and pulmonary hypertension diagnosis and how her work in the field of clinical research helps her …

Episode 248 - Mira Dean

May 20th, 2019

11:43

Pulmonary hypertension patient, Mira Dean discusses her diagnosis, overcoming fear of IV therapy and embracing exercise to live a healthier PH …

Episode 247 - Laura Rivera

May 16th, 2019

2:21

Patient Laura Rivera has contended with Pulmonary Hypertension for 24 years. She hasn't let the disease stop her from achieving her goals. Laura will …

Episode 246 - Nicole Reid, RN

May 13th, 2019

4:44

Nicole Reid, RN discusses her pulmonary hypertension diagnosis, its impact on her nursing career and the importance of clinical trials.

Learn more …

Episode 245 - Stacie Friend

May 9th, 2019

3:55

Pulmonary hypertension patient and lung transplant recipient, Stacie Friend discusses her road to diagnosis and recovery.

Learn more about pulmonary …

Episode 244 - Mike Naple

May 6th, 2019

7:35

Mike Naple is a media and communications strategist and PH patient living in Washington, D.C. Mike writes about living with PH and the intersection …

Episode 243 - Jeannette Morrill

May 2nd, 2019

8:01

May 5, 2019 (World PH Day) is the 43 anniversary of long-term pulmonary hypertension survivor Jeannette Morrill's PH Diagnosis. She discusses four …

Episode 242 - Stephanie Volino

April 29th, 2019

11:28

Pulmonary hypertension caregiver Stephanie Volino discusses her daughter Anna's road to a PH diagnosis following the loss of her other daughter, …

Episode 241 - Shaye Wallace

April 25th, 2019

10:40

Pulmonary hypertension patient, Shaye Wallace discusses her diagnosis at age 10, why she chose a Potts shunt surgery and how she's battling the …

Episode 240 - Liza Bonpin

April 22nd, 2019

7:23

Pulmonary hypertension pediatric caregiver, Liza Bonpin discusses her daughter Maddie's diagnosis, details her right side congenital diaphragmatic …

Episode 239 - Darren Bell

April 18th, 2019

7:05

Darren Bell is a former PHA Canada President and Chair of the Board of Directors. One of PHA Canada's founding board members, Darren joined the PH community when his son Dylan was diagnosed with IPAH in 1998. Dylan lost …

Episode 238 - Monica A. Sanchez

April 15th, 2019

9:31

Pulmonary hypertension patient, Monica A. Sanchez discusses her PH diagnosis, Graves' disease and hypothyroidism and how she advocates for herself.

Episode 237 - Alejandra Hernandez

April 11th, 2019

9:05

Pulmonary hypertension patient, Alejandra Hernandez discusses being diagnosed with PH in the 9th week of pregnancy and the power of acceptance while …

Episode 236 - Samantha Ramirez

April 8th, 2019

9:34

Former pulmonary hypertension patient and lung transplant recipient, Samantha Ramirez discusses her PH diagnosis because of over-the-counter diet …

Episode 235 - Aryeh Cooperman

April 4th, 2019

8:53

CEO of Pulmonary Hypertension Association Israel, Aryeh Cooperman on his role as a caregiver for his wife and why advocating and raising awareness is …

Episode 234 - David Stott

April 1st, 2019

5:44

David Stott is a 42 year old musician and operating theatre practitioner from north west England. David was diagnosed with IPAH in August 2013. He …

Episode 233 - Stacey Barta

March 28th, 2019

7:39

Pulmonary hypertension patient, Stacey Barta discusses how she refused to give up on being a preschool teacher after being put on disability …

Episode 232 - Sarah Brackett

March 25th, 2019

12:01

In this episode, pulmonary hypertension patient Sarah Brackett discusses her devastating road to diagnosis, busting CTEPH through surgery and the …

Episode 231 - Joellen Brown

March 21st, 2019

5:43

In this episode, pulmonary hypertension patient Joellen Brown discusses being born with a hole in her heart in 1956 that developed into a PH …

Episode 230 - Hollie Satona

March 18th, 2019

5:50

In this episode, pediatric pulmonary hypertension caregiver, Hollie Satona discusses her son Joelan's PH diagnosis and the challenge of juggling …

Episode 229 - Barbara Thompson

March 14th, 2019

4:39

In this episode, pulmonary hypertension patient Barbara Thompson discusses why she wears zebra clothing 365 days a year and her long road through 14 …

Episode 228 - Diane Dauwalder

March 11th, 2019

4:05

In this episode, pulmonary hypertension patient Diane Dauwalder discusses how she became symptomatic in 2002, preparing for the end of her life, and …

Episode 227 - Alleena Shiwdas

March 7th, 2019

5:00

In this episode, pulmonary hypertension patient, Alleena Shiwdas discusses the importance of a good peer support network and how psychological care …

Episode 226 - Alexis Trotter

March 4th, 2019

5:07

In this episode, pulmonary hypertension patient Alexis Trotter discusses living on oxygen 24/7, her passion for hula dancing, what inspired her to …

Episode 225 - Gwendolyn R. Brown

February 28th, 2019

4:38

In this episode, 40 year long-term pulmonary hypertension survivor Gwendolyn R. Brown discusses the importance of clinical trials, building a great …

Episode 224 - Judith Moatti

February 25th, 2019

5:24

In this episode, PHA Canada ambassador Judith Moatti discusses the importance of early diagnosis and awareness. Judith was first diagnosed with …

Episode 223 - Kathleen Richardson

February 21st, 2019

5:49

In this episode, pulmonary hypertension patient, Kathleen Richardson, discusses exercise, Team PHenomenal Hope and why research is critical.

Learn …

Episode 222 - Merle Reeseman

February 18th, 2019

5:56

In this episode, pulmonary hypertension patient, Merle Reeseman, discusses her PH diagnosis and the importance of being seen by a PH specialist who …

Episode 221 - Kevin Burke

February 14th, 2019

7:53

In this episode, Australian pulmonary hypertension patient Kevin Burke discusses his PH diagnosis and dealing with depression.

Learn more about …

Episode 220 - Scott Visovatti, MD

February 11th, 2019

9:18

In this episode, Scott Visovatti, MD discusses how early treatment of patients with abnormal exercise studies can delay, or even prevent, the …

Episode 219 - Vallerie McLaughlin, MD

February 7th, 2019

6:30

In this episode, Vallerie McLaughlin, MD from Michigan Medicine's Cardiovascular Center discusses what a pulmonary hypertension patients should …

Episode 218 - Vallerie McLaughlin, MD

February 4th, 2019

10:49

In this episode, Vallerie McLaughlin, MD gives an overview of 6th World Symposium on Pulmonary Hypertension, which took place in Nice, France, in …

Episode 217 - Vikas Aggarwal, MBBS MPH

January 31st, 2019

7:34

In this episode, Dr. Vikas Aggarwal discusses balloon pulmonary angioplasty as a treatment for CTEPH patients. Dr. Aggarwal is a board certified …

Episode 216 - Jonathan Haft, MD

January 28th, 2019

10:25

In this episode, Jonathan Haft, MD discusses PTE (pulmonary thromboendarterectomy) surgery, which is the potentially curative operation offered for …

Episode 215 - Marc de Perrot, MD

January 24th, 2019

9:21

Dr. Marc de Perrot joined the Division of Thoracic Surgery as a staff surgeon and Assistant Professor at the University of Toronto in 2005.  In 2009, he was appointed Associate Professor of Surgery based on his research …

Episode 214 - Angela Bates, MD

January 21st, 2019

5:40

Dr. Angela Bates is pediatric PH specialist from Stollery Children’s Hospital. She is committed to conducting research in pediatric patients in the …

Episode 213 - John Granton, MD

January 17th, 2019

6:17

Dr. John Granton the head of Respirology at University Health Network, Mount Sinai Hospital and Women’s College Hospital.  He is a consultant in …

Episode 212 - Sanjay Mehta, MD

January 14th, 2019

7:10

Sanjay Mehta, MD, FRCPC, FCCP, is PHA Canada’s Chair. He is additionally Professor of Medicine at the University of Western Ontario, and Director of …

Episode 211 - Lori Heaton

November 29th, 2018

13:27

Pulmonary hypertension caregiver and author, Lori Heaton discusses her daughter Maddie's twenty-year journey of courage and strength living with PH. …

Episode 210 - Kristine Ritchie

November 26th, 2018

6:48

Pediatric PH caregiver Kristine Ritchie discusses her son Brendan’s pulmonary hypertension diagnosis.  Kristine talks about the importance of …

Episode 209 - Sonya Collins

November 22nd, 2018

8:03

Diagnosed with IPAH almost 16 years ago, Canadian Sonya Collins discusses spending about four years questioning her shortness of breath (SOB) and …

Episode 208 - Shannon Reitor

November 19th, 2018

4:33

Pediatric PH caregiver Shannon Reitor discusses her son Adam’s pulmonary hypertension diagnosis.  Shannon details lobbying the Canadian government, …

Episode 207 - Angela Michelle

November 15th, 2018

9:48

Angela Michelle is a professional photographer and yoga instructor living in San Antonio, Texas. She was diagnosed with CTEPH in January 2018 after years of experiencing symptoms. Angela underwent PTE surgery in August …

Episode 206 - Robert Frantz, MD

November 12th, 2018

10:10

Robert P. Frantz is the director of the Mayo Pulmonary Hypertension Clinic, which has a robust referral practice of patients with pulmonary arterial …

Episode 205 - Jennifer Gendron

November 8th, 2018

11:24

Canadian caregiver Jennifer Gendron has been working with the pulmonary hypertension community since 2003, when her son Braden was diagnosed at the …

Episode 204 - Janette Reyes, NP

November 5th, 2018

6:34

Janette Reyes, NP has provided comprehensive care for children with Pulmonary Hypertension at the Hospital for Sick Children since the development of …

Episode 203 - Sam Bowker and Ken Porter

November 1st, 2018

8:42

Sam Bowker is a pulmonary hypertension patient on triple therapy from Canada. Ken Porter is her partner and caregiver. They discuss Sam’s diagnosis …

Episode 202 - Natalie Roy

October 29th, 2018

6:41

Canadian Natalie Roy is a former pulmonary hypertension patient who received a double-lung transplant in September 2017. She discusses having an …

Episode 201 - Brooke Paulin

October 25th, 2018

7:13

Canadian Pulmonary Hypertension Patient, Brooke Paulin discusses her road to PH Diagnosis.

Learn more about pulmonary hypertension trials a

Episode 200 - Iain Armstrong, PHA UK

October 22nd, 2018

5:48

In this episode, Chairman of PHA UK, Iain Armstrong talks about PHawareness Week 2018 (October 22-28), EmPHasis10 and the power of collaboration …

Episode 199 - Darren Dempsey

October 18th, 2018

3:19

Canadian Pulmonary Hypertension Caregiver Darren Dempsey discusses the impact rare disease has had on his family and how stress impacts the entire …

Episode 198 - Marion Roth

October 15th, 2018

6:53

Canadian Pulmonary Hypertension Patient, Marion Roth discusses the importance of clinical trials, fearlessly tackling her bucket list and educating …

Episode 197 - Kristen Wieneke

October 11th, 2018

7:06

Kristen Wieneke is a long term pulmonary hypertension survivor. She was diagnosed in 2003 during open heart surgery to repair an ASD. She discusses …

Episode 196 - Abby Sherwood

October 8th, 2018

6:11

Abby Sherwood discusses navigating life with pulmonary hypertension on the 15th anniversary of her PH diagnosis.

Learn more about pulmonary …

Episode 195 - Laurie Witherwax

October 4th, 2018

5:08

Laurie Witherwax is the Vice President of Project Management at Worldwide Clinical Trials, which provides drug development services from Early Phase and Bioanalytical Sciences, through Phase II, III and IV. In this …

Episode 194 - Vinicio A de Jesus Perez, MD

October 1st, 2018

8:09

In this episode, Dr. Perez discusses genetic markers in a population of Iberian gypsies, who are afflicted with a very severe form of pulmonary …

Episode 193 - Jessica York

September 27th, 2018

2:52

Jessica York is a pediatric pulmonary hypertension caregiver to her 6 year old daughter Haylee.  In this episode she discusses Hay's diagnosis and …

Episode 192 - Tom Krohn

September 24th, 2018

10:04

Tom Krohn is the Chief Development Officer at Antidote. In this episode, Tom details a collaboration between phaware global association® and Antidote …

Episode 191 - Maleen Fischer

September 20th, 2018

10:00

At the age of three, Maleen Fischer was diagnosed with pulmonary hypertension and, as there was no treatment for this fatal disease at the time in …

Episode 190 - Victor F. Tapson, MD

September 17th, 2018

4:43

Victor F. Tapson, MD discusses the PERT Consortium, a network of multidisciplinary pulmonary embolism response teams working to improve the care of …

Episode 189 - Vallerie McLaughlin, MD

September 13th, 2018

11:18

Vallerie McLaughlin, MD from Michigan Medicine's Cardiovascular Center explains the basics of clinical trials in part 2 of her discussion. Dr. …

Episode 188 - Vallerie McLaughlin, MD

September 10th, 2018

7:19

Vallerie McLaughlin, MD from Michigan Medicine's Cardiovascular Center breaks down the different phases of clinical trials in part 1 of her …

Episode 187 - Beth DeCristofaro

September 6th, 2018

8:02

Beth DeCristofaro is a pulmonary hypertension patient from Virginia. She discusses her diagnosis and involvement in clinical trial research. Beth is …

Episode 186 - Alex Flipse

September 3rd, 2018

10:08

Alex Flipse was diagnosed with pulmonary hypertension on September 3, 1998.  On the 20th anniversary of her diagnosis, Alex details her journey …

Episode 185 - Dunbar Ivy, MD

August 30th, 2018

3:43

Dr. Dunbar Ivy discusses the work of the Pediatric Pulmonary Hypertension Network, (PPHNet) on the network's 10th anniversary. PPHNet is a network of …

Episode 184 - Roberta Keller, MD

August 27th, 2018

10:11

Dr. Roberta Keller discusses the work of the Pediatric Pulmonary Hypertension Network, (PPHNet) on the networks 10th anniversary. PPHNet is a network …

Episode 183 - Alvin Rocha, RN

August 23rd, 2018

4:50

Alvin Rocha, RN discusses clinic visits in the outpatient setting and his role in the Pediatric Pulmonary Hypertension Program of Children’s Hospital …

Episode 182 - Anna Brown, RN

August 20th, 2018

7:34

Anna Brown, RN discusses pulmonary hypertension patients transitioning from pediatrics to adult program as well as the need for comprehensive …

Episode 181 - Victor F. Tapson, MD

August 16th, 2018

3:25

Victor F. Tapson, MD from Cedars-Sinai discusses the different pathways that medical professionals and researchers utilize in treating pulmonary …

Episode 180 - Richard Channick, MD

August 13th, 2018

5:09

Richard Channick, MD discusses the importance of clinical trials and how various approved pulmonary hypertension therapies work on specific pathways.

Episode 179 - Roberta Keller, MD

August 9th, 2018

6:59

Roberta Keller, MD dicusses the importance of clinical trials and clinical research in general, but particularly in newborns. Dr. Keller is a …

Episode 178 - Roberta Keller, MD

August 6th, 2018

6:18

Roberta Keller, MD discusses the importance of multidisciplinary comprehensive care centers for children with chronic cardiopulmonary conditions. Dr. …

Episode 177 - Anson Daine, RN

August 2nd, 2018

4:32

Anson Daine, RN from UCSF Benioff Children's Hospital discusses UCSF’s pediatric pulmonary hypertension program and caring for infants in the …

Episode 176 - Rolf Berger, MD

July 30th, 2018

6:10

Rolf Berger, MD discusses Pediatric Pulmonary Hypertension treatment in the Netherlands and the challenges in clinical trials in children with PAH. …

Episode 175 - Dunbar Ivy, MD

July 26th, 2018

5:07

Dunbar Ivy, MD discusses the pipeline of potential PAH pediatric therapies.

Learn more about pulmonary hypertension at www.phaware365.global. Never …

Episode 174 - Dunbar Ivy, MD

July 23rd, 2018

7:04

Dunbar Ivy, MD gives an update on the 6th World Symposium on Pulmonary Hypertension, which was held in Nice, France earlier this year. Dr. Ivy …

Episode 173 - Victor F. Tapson, MD

July 19th, 2018

8:07

In this episode Dr. Victor Tapson from Cedars-Sinai discusses novel Pulmonary Hypertension Therapies.

Learn more about pulmonary hypertension at

Episode 172 - Richard Channick, MD

July 16th, 2018

5:25

In this episode, Richard Channick, MD discusses pulmonary embolism or blood clots in the lungs, and how they can progress to CTEPH (Chronic …

Episode 171 - Iain Hess

July 12th, 2018

8:21

Iain Hess discusses his lifesaving double-lung transplant and his plans for life post PH. Iain Hess is a former pulmonary hypertension patient from …

Episode 170 - Steven D. Nathan, MD

July 9th, 2018

7:11

In this episode Dr. Steven D. Nathan discusses sarcoidosis and how it can be complicated by the development of pulmonary hypertension.

Steven D. …

Episode 169 - Uyen Truong, MD

July 5th, 2018

5:26

In this episode, Dr. Uyen Truong discusses how MRI has the potential of providing as much if not more information about the cardiovascular system as …

Episode 168 - Amina Berbić

July 2nd, 2018

5:20

Amina Berbić is a pulmonary arterial hypertension (PAH) patient from Bosnia and Herzegovina. She is a student and a local non-government organization …

Episode 167 - Harrison Hap Farber, MD

June 28th, 2018

3:06

Harrison "Hap" Farber, MD discusses ways Team PHenomenal Hope seeks to build community with those suffering from PH including the #LetMeBeYourLungs program. Dr. Farber is the Vice President of Team PHenomenal Hope.

Dr. …

Episode 166 - VIPhaware Pin Trading

June 25th, 2018

5:25

A LIVE Global #phaware Activation.  phaware global association® invites you to become a #VIPhaware Pin Trader

Participate in a LIVE “treasure hunt.” phaware® President and Co-Founder, Steve Van Wormer details how

Episode 165 - Vinicio A de Jesus Perez, MD

June 21st, 2018

7:55

In this episode, Dr. Perez discusses health inequality and ways to improve access of care for patients with disadvantageous ethnic backgrounds. …

Episode 164 - Pirooz Eghtesady, MD

June 18th, 2018

9:25

Dr. Pirooz Eghtesady is a pediatric cardiothoracic surgeon at the Washington University School of Medicine in St Louis. His research focus is on …

Episode 163 - Michelle Liu, MD (Pt 2)

June 14th, 2018

5:18

Michelle Liu, MD discusses how physicians can use “PEARLS” to build relationships with patients. The mnemonic PEARLS – stands for partnership, …

Episode 162 - Michelle Liu, MD (Pt 1)

June 11th, 2018

9:16

PH and Transplant: Perspectives from a Physician‐Mother Caregiver. Michelle Liu, MD discusses her daughter Esther Grace’s 5 year journey from …

Episode 161 - Libby Webb

June 7th, 2018

8:51

Libby Webb discusses how ZappRx is leveraging technology to simplify and automate the way specialty drugs get to patients.

Libby is the Senior Vice …

Episode 160 - Harrison Hap Farber, MD

June 4th, 2018

4:06

Harrison "Hap" Farber, MD discusses this importance of poster sessions.

Dr. Farber is considered an opinion leader and internationally recognized …

Episode 159 - Allison Dsouza

May 31st, 2018

6:25

Allison Dsouza shares tips for patients transitioning to life at college and how her experience as a patient led to her decision to attending nursing …

Episode 158 - Tilman Humpl, MD

May 28th, 2018

4:59

Dr. Tilman Humpl is the Director of the Pulmonary Hypertension Service at the Hospital for Sick Children in Toronto, which is part of the Pediatric …

Episode 157 - Vinicio A de Jesus Perez, MD

May 24th, 2018

14:04

Vinicio de Jesus Perez, MD is Assistant Professor of Medicine (Pulmonary and Critical Care Medicine) at the Stanford Adult PH Clinic where he trains …

Episode 156 - George B. Mallory, MD

May 21st, 2018

9:24

George B. Mallory, MD is a pediatric pulmonologist at Texas Children's Hospital. In 2001, he joined the Baylor College of Medicine pediatric faculty …

Episode 155 - Travis Flores

May 17th, 2018

11:13

At 4 months old, Travis Flores was diagnosed with Cystic Fibrosis, a life-long genetic disease that attacks the respiratory & digestive systems. …

Episode 154 - Vinicio A de Jesus Perez, MD

May 14th, 2018

6:21

Vinicio de Jesus Perez, MD is Assistant Professor of Medicine (Pulmonary and Critical Care Medicine) at the Stanford Adult PH Clinic where he trains …

Episode 153 - Shari Caffrey

May 10th, 2018

7:29

Shari Caffrey is the founder of TaylorsWish.org. Taylor’s Wish was created in memory of Taylor Renee Caffrey, Shari and Michael’s daughter and twin …

Episode 152 - Monica Penaranda

May 7th, 2018

8:22

Monica Penaranda is a long term pulmonary hypertension patient from California. She was diagnosed with PH nearly twenty four years ago. In this …

Episode 151 - Mark Grady, MD

May 3rd, 2018

7:23

Ronald Mark Grady, MD is a pediatric cardiologist at the Washington University School of Medicine in St Louis. He has over 29 years of diverse …

Episode 150 - World PH Day 2018

April 30th, 2018

7:56

A LIVE Global #phaware Activation. Every year on May 5th, pulmonary hypertension organizations and groups around the world participate in World …

Episode 149 - Sanjay Mehta, MD

April 26th, 2018

11:45

Sanjay Mehta, MD, FRCPC, FCCP, is PHA Canada’s Chair. He is additionally Professor of Medicine at the University of Western Ontario, and Director of …

Episode 148 - Jamie Myrah

April 23rd, 2018

6:28

Jamie Myrah joined PHA Canada as the organization’s first Executive Director in January 2016. She is responsible for overseeing all of their operations, including providing support and guidance to the staff in …

Episode 147 - Julie Scott

April 19th, 2018

4:19

Julie Scott is a pulmonary hypertension patient from San Diego. She is also a co-leader of the San Diego PH Support Group on facebook. In this …

Episode 146 - Wendy Jackson

April 16th, 2018

9:36

Wendy Jackson is a long term survivor of pulmonary hypertension. She was diagnosed with CTEPH 30 years ago. In this episode, Wendy discusses her road …

Episode 145 - Ashley Abuel, RN

April 12th, 2018

8:23

Ashley Abuel, RN, BSN is the outpatient fetal/pediatric cardiology nurse manager for the Children's Heart Center at UCLA Mattel Children's Hospital.

Episode 144 - Mark S. Sklansky, MD

April 9th, 2018

7:18

Dr. Mark S. Sklansky leads the UCLA Division of Pediatric Cardiology in providing comprehensive, collaborative, state-of-the-art and compassionate …

Episode 143 - Nancy Frede, RN

April 5th, 2018

7:10

Nancy Frede, RN is a mother of a PH patient (Camille Frede) surviving 24 years since diagnosed. Nancy is a nurse, which is an advantage in managing healthcare issues with her daughter. Transplant is a new area for them …

Episode 142 - Camille Frede, RN

April 2nd, 2018

6:27

Camille Frede, RN is from Grand Rapids Michigan. She was diagnosed with pulmonary hypertension at the age of four. Camille became a nurse because she …

Episode 141 - Rachel Abraham

March 29th, 2018

6:08

Rachel Abraham is a freshman at American University in Washington DC who was diagnosed shortly after her birth. She is originally from Mamaroneck, New York and believes that just because she has PH doesn't mean that her …

Episode 140 - Claire Parker, PNP

March 26th, 2018

5:42

Claire Parker is a pediatric nurse practitioner at UCSF Benioff Children's Hospital who specializes in the treatment of pediatric pulmonary …

Episode 139 - Sandeep Sahay, MD

March 22nd, 2018

4:16

Sandeep Sahay is an Assistant Professor and pulmonary hypertension specialist from Houston Methodist Hospital. Dr. Sahay is a CHEST Foundation PAH …

Episode 138 - Anna Jeter, RN

March 19th, 2018

6:34

Anna Jeter is a long term survivor battling pulmonary hypertension. In this episode, Anna discusses approaching the transplant window and how her …

Episode 137 - Kevin Paskawych

March 15th, 2018

7:22

Kevin Paskawych is a pulmonary hypertension patient and car racing enthusiast from Ohio. In this episode, he discusses his dream to drive PH …

Episode 136 - Tarya Laviolette

March 12th, 2018

9:04

Tarya Laviolette is a pulmonary hypertension patient from Canada.  She is a former Community and Relations Coordinator for Pulmonary Hypertension …

Episode 135 - Janice Janus

March 8th, 2018

6:11

Janice Janus is a pulmonary hypertension patient from New Kensington, Pennsylvania.  Janice co-created the facebook PH support group: Pulmonary …

Episode 134 - Claire Parker, PNP

March 5th, 2018

7:43

Claire Parker is a pediatric nurse practitioner at UCSF Benioff Children's Hospital who specializes in the treatment of pediatric pulmonary …

Episode 133 - Sandeep Sahay, MD

March 1st, 2018

9:51

Sandeep Sahay is an Assistant Professor and pulmonary hypertension specialist from Houston Methodist Hospital. Dr. Sahay is a CHEST Foundation PAH …

Episode 132 - Bernard Thébaud, MD, PhD

February 26th, 2018

4:12

Dr. Bernard Thébaud is a clinician-scientist recruited to Ottawa from Edmonton in 2012 to accelerate the translation of stem cell-based therapies for lung diseases. Dr. Thébaud is a senior scientist with the Ottawa …

Episode 131 - Marlene Rabinovitch, MD

February 22nd, 2018

8:13

Dr. Rabinovitch joined Stanford University School of Medicine Faculty in the summer of 2002 as the Dwight and Vera Dunlevie Professor of Pediatric …

Episode 130 - Roberta Keller, MD (Part 2)

February 19th, 2018

6:37

Dr. Roberta Keller is a neonatologist, an expert in caring for critically ill newborns, particularly those with congenital lung or heart disease. She …

Episode 129 - Roberta Keller, MD (Part 1)

February 15th, 2018

7:29

Dr. Roberta Keller is a neonatologist, an expert in caring for critically ill newborns, particularly those with congenital lung or heart disease. She …

Episode 128 - Colin Meyer, MD

February 12th, 2018

10:31

Colin Meyer, MD is Reata Pharmaceutical’s Chief Medical Officer and leads product development and strategy, clinical trial design and analysis, and …

Episode 127 - Scott Manaker, MD, PhD

February 8th, 2018

8:48

Dr. Scott Manaker is an actively practicing pulmonary and critical care physician in the Pulmonary and Critical Care Division at the University of …

Episode 126 - Lane Benningfield

February 5th, 2018

6:03

Lane Benningfield is a pulmonary hypertension patient from Charlotte, North Carolina. In this episode he talks about the power of a positive mindset. …

Episode 125 - Joanne Sperando

February 1st, 2018

9:10

Joanne Sperando lives in North Babylon, NY and was the third person in her family to be diagnosed with Pulmonary Hypertension (PH). Joanne’s mother …

Episode 124 - Brooke Keith

December 28th, 2017

2:13

Brooke Keith is a pulmonary hypertension patient from Mason City, Iowa.  She was diagnosed in 2007 at age 8. She is now 19, a freshman in college …

Episode 123 - Dijon Brewster

December 25th, 2017

4:31

Dijon Brewster is a pulmonary hypertension patient who was diagnosed on 9/11/2001.

Learn more about pulmonary hypertension at phaware365.global. …

Episode 122 - Cheryl Wegener

December 21st, 2017

9:05

Pediatric pulmonary hypertension caregiver, Cheryl Wegener discusses her daughter Madison’s road to a PH diagnosis and the impact living with this …

Episode 121 - Eileen Washington

December 18th, 2017

6:47

Eileen is a pulmonary hypertension patent from Texas who was diagnosed with PH following a severe car accident.

Learn more about pulmonary …

Episode 120 - Harrison Hap Farber, MD

December 14th, 2017

7:53

Harrison "Hap" Farber, MD discusses PAH associated with HIV infection.

Dr. Farber is considered an opinion leader and internationally recognized …

Episode 119 - Harrison Hap Farber, MD

December 11th, 2017

4:28

Harrison "Hap" Farber, MD discusses inhaled iNO and oxygen therapy as an add-on therapy for patients with pulmonary hypertension.

Dr. Farber is …

Episode 118 - Eric Austin, MD (Part 3)

December 7th, 2017

8:23

Eric Austin is the Director of the Vanderbilt Pediatric Pulmonary Hypertension (PH) Program at Vanderbilt University Medical Center’s Monroe Carell …

Episode 117 - Eric Austin, MD (Part 2)

December 4th, 2017

11:11

Eric Austin is the Director of the Vanderbilt Pediatric Pulmonary Hypertension (PH) Program at Vanderbilt University Medical Center’s Monroe Carell …

Episode 116 - Eric Austin, MD (Part 1)

November 30th, 2017

9:04

Eric Austin is the Director of the Vanderbilt Pediatric Pulmonary Hypertension (PH) Program at Vanderbilt University Medical Center’s Monroe Carell …

Episode 115 - Marc Humbert, MD

November 27th, 2017

8:49

Marc Humbert, MD, PhD, is Professor of Respiratory Medicine at the South Paris University (Université Paris-Saclay) in Le Kremlin-Bicêtre, France. He …

Episode 114 - Guillermo Young, MD

November 23rd, 2017

15:42

Dr. Young graduated from the Univ Nac Mayor De San Marcos, Fac De Med, Lima, Peru in 1967. With more than 50 years experience, Dr. Young is the …

Episode 113 - Tamara Norton, CCN

November 20th, 2017

4:58

Tamara Norton, CCN from UC San Diego Medical Center discusses a CTEPH patients journey from evaluation through PTE surgery. 

Learn more about …

Episode 112 - Steve Mathai, MD

November 16th, 2017

6:46

Dr. Stephen Mathai is an Associate Professor of medicine at the Johns Hopkins University School of Medicine. His areas of clinical expertise include …

Episode 111 - Steve Mathai, MD

November 13th, 2017

11:39

Dr. Stephen Mathai is an Associate Professor of medicine at the Johns Hopkins University School of Medicine. His areas of clinical expertise include …

Episode 110 - Vic Tapson, MD

November 9th, 2017

7:37

Victor F. Tapson, MD, FCCP, FRCP from Cedars-Sinai Medical Group discusses the keys to a proper CTEPH diagnosis. Dr. Tapson also talks about the importance of the CTEPH National Proceedings Conference taking place …

Episode 109 - Connie Sherwood, CN

November 6th, 2017

4:13

Connie Sherwood, CN from UC San Diego Medical Center discusses how patients get their life back post PTE surgery.

Learn more about pulmonary …

Episode 108 - John Hess

November 2nd, 2017

8:08

John Hess is one of phaware global association’s co-founders. He and his wife Seema are caregivers to their son, Iain, who was diagnosed with …

Episode 107 - Tim Smith

October 30th, 2017

4:36

Pulmonary hypertension patient, Tim Smith was diagnosed in October 2014. On the third anniversary of his PH diagnosis, Tim shares his thoughts on …

Episode 106 - Joanne Sperando

October 26th, 2017

6:37

Joanne Sperando lives in North Babylon, NY and was the third person in her family to be diagnosed with Pulmonary Hypertension (PH). Joanne’s mother …

Episode 105 - Seema Hess

October 23rd, 2017

30:13

Seema Hess and her husband John (one of phaware’s co-founders) are caregivers to their son, Iain, who was diagnosed with pulmonary hypertension at …

Episode 104 - Juan Alejos, MD

October 19th, 2017

8:56

Dr. Juan Alejos currently serves as the Medical Director of the Pediatric Heart Transplant/Cardiomyopathy Program at Mattel Children’s Hospital at UCLA. He is also the founder of Hearts With Hope, a non-profit, whose …

Episode 103 - Wayne Beall

October 16th, 2017

7:41

Wayne Beall is a CTEPH (Chronic thromboembolic pulmonary hypertension) patient from Idaho. Wayne’s work and "wondering" took him through many Western …

Episode 102 - Justin Martinez

October 12th, 2017

7:21

Justin Martinez is an identical twin diagnosed with Pulmonary Hypertension in 2002 at 14 years old. He is a double lung transplant survivor since …

Episode 101 - Christine Kramer

October 9th, 2017

6:55

Pulmonary Hypertension patient Christine Kramer discusses developing PH during pregnancy, motherhood, clinical trials &the importance of …

Episode 100 - Victor Test, MD (Part 2 of 2)

October 5th, 2017

5:44

Victor J. Test, MD is a professor of medicine at Duke University School of Medicine. He treats patients with pulmonary vascular diseases including …

Episode 99 - Victor Test, MD (Part 1 of 2)

October 2nd, 2017

11:39

Victor J. Test, MD is a professor of medicine at Duke University School of Medicine. He treats patients with pulmonary vascular diseases including …

Episode 98 - Ashley Schroeder

September 28th, 2017

9:13

Ashley Schroeder is a wife, mother of two daughters and familial pulmonary hypertension patient of five years. Ashley discusses being diagnosed, …

Episode 97 - Brian Hanna, MD

September 25th, 2017

5:39

Brian D. Hanna, MDCM, PhD, FAAP, FACC, is a board-certified cardiologist and Director of the Section of Pulmonary Hypertension at Children's Hospital …

Episode 96 - Katie Davis

September 21st, 2017

8:04

The Race Against PH was started in 2001 by Katie Davis, Eddie Davis and Paige Dunn to promote awareness to the devastating disease Katie’s mother was battling. The 17th Annual Race Against PH 5k takes place on November …

Episode 95 - Colleen Schnell

September 18th, 2017

6:41

Colleen Schnell is a long term pulmonary hypertension patient who lives in Niagara Falls, NY. She is the support group leader of the Buffalo Niagara …

Episode 94 - Peter Leary, MD

September 14th, 2017

3:13

Dr. Peter Leary is a specialist in pulmonary and critical care medicine who cares for patients with pulmonary hypertension. Dr. Leary is focused on …

Episode 93 - Peter Leary, MD

September 11th, 2017

5:43

Dr. Peter Leary is a specialist in pulmonary and critical care medicine who cares for patients with pulmonary hypertension. Dr. Leary is focused on …

Episode 92 - Patricia George, MD

September 7th, 2017

7:56

Patricia George, MD, is a PH pulmonologist and co-director of the pulmonary hypertension program at National Jewish Health. She is also one of the …

Episode 91 - George B. Mallory, MD

September 4th, 2017

5:31

George B. Mallory, MD is a pediatric pulmonologist at Texas Children's Hospital. In 2001, he joined the Baylor College of Medicine pediatric faculty …

Episode 90 - Timothy M Fernandes, MD

August 31st, 2017

7:52

Timothy Fernandes, MD, MPH, is a board-certified pulmonologist who focuses on pulmonary vascular disease. He has a special interest in caring for …

Episode 89 - Brian Hanna, MD

August 28th, 2017

3:51

Brian D. Hanna, MDCM, PhD, FAAP, FACC, is a board-certified cardiologist and Director of the Section of Pulmonary Hypertension at Children's Hospital …

Episode 88 - Juan Alejos, MD

August 24th, 2017

6:30

Dr. Juan Alejos currently serves as the Medical Director of the Pediatric Heart Transplant/Cardiomyopathy Program at Mattel Children’s Hospital at …

Episode 87 - Richard N. Channick, MD (PE Part 2 of 2)

August 21st, 2017

5:35

Dr. Richard N. Channick discusses PE symptoms and treatment in Part 2 of 2 in his series on pulmonary embolism. He is the director of the Pulmonary …

Episode 86 - Richard N. Channick, MD (PE Part 1 of 2)

August 17th, 2017

5:31

Dr. Richard N. Channick discusses the basics of blood clots and treatment options in Part 1 of 2 in his series on pulmonary embolism. He is the …

Episode 85 - Liz Klings, MD

August 14th, 2017

5:14

Dr. Elizabeth Klings is an Associate Professor of Medicine and the Director of the Center for Excellence in Sickle Cell Disease at Boston University …

Episode 84 - Peter Leary, MD (Part 3 of 3)

August 10th, 2017

5:43

Dr. Peter Leary is a specialist in pulmonary and critical care medicine who cares for patients with pulmonary hypertension. Dr. Leary is focused on …

Episode 83 - Peter Leary, MD (Part 2 of 3)

August 7th, 2017

5:35

Dr. Peter Leary is a specialist in pulmonary and critical care medicine who cares for patients with pulmonary hypertension. Dr. Leary is focused on …

Episode 82 - Peter Leary, MD (Part 1 of 3)

August 3rd, 2017

5:59

Dr. Peter Leary is a specialist in pulmonary and critical care medicine who cares for patients with pulmonary hypertension. Dr. Leary is focused on …

Episode 81 - Roham Zamanian, MD (Part 2 of 2)

July 31st, 2017

8:19

Dr. Zamanian is the Director of the Adult Pulmonary Hypertension (PH) Program at Stanford University Medical Center. In Part 2 of his 2 episode …

Episode 80 - Roham Zamanian, MD (Part 1 of 2)

July 27th, 2017

6:56

Dr. Zamanian is the Director of the Adult Pulmonary Hypertension (PH) Program at Stanford University Medical Center. In Part 1 of his 2 episode …

Episode 79 - Murali Chakinala, MD (Part 2 of 2)

July 24th, 2017

8:19

Murali Chakinala, MD discusses the basics of clinical trials in PAH. Dr. Chakinala is a Professor in the Division of Pulmonary and Critical Care …

Episode 78 - Murali Chakinala, MD (Part 1 of 2)

July 20th, 2017

7:02

Murali Chakinala, MD discusses the role of combination therapy in treating PAH. Dr. Chakinala is a Professor in the Division of Pulmonary and …

Episode 77 - Vic Tapson, MD (PE Part 3 of 3)

July 17th, 2017

5:02

Victor F. Tapson, MD, FCCP, FRCP from Cedars-Sinai Medical Group discusses PE Treatment in Part 3 of his 3 Episode Series on Pulmonary Embolism. Dr. …

Episode 76 - Vic Tapson, MD (PE Part 2 of 3)

July 13th, 2017

6:31

Victor F. Tapson, MD, FCCP, FRCP from Cedars-Sinai Medical Group discusses PE Treatment in Part 2 of his 3 Episode Series on Pulmonary Embolism. Dr. …

Episode 75 - Vic Tapson, MD (PE Part 1 of 3)

July 10th, 2017

6:34

Victor F. Tapson, MD, FCCP, FRCP from Cedars-Sinai Medical Group discusses PE Treatment in Part 1 of his 3 Episode Series on Pulmonary Embolism. Dr. …

Episode 74 - Sean Wyman, DO, MSci

July 6th, 2017

5:56

Sean Wyman has lived with a pulmonary hypertension diagnosis for over 15 years. He has been an active voice in the PH community in all that time. …

Episode 73 - Maricela Arevalo

July 3rd, 2017

4:34

Team PHenomenal Hope Mexico was created to assist patients with pulmonary hypertension in Mexico. All funds raised through Team PHenomenal Hope …

Episode 72 - Bob Saget

June 29th, 2017

5:00

Bob Saget is an acclaimed actor, comedian, director, writer and producer. Among many other television shows and movies, he wrote and directed the telefilm For Hope, chronicling his sister’s struggle with scleroderma. …

Episode 71 - Richard N. Channick, MD

June 26th, 2017

6:57

Dr. Richard N. Channick discusses clinical trials and the process of how new therapies are developed for patients. He is the director of the …

Episode 70 - Abby Poms, RRT CCRP

June 22nd, 2017

10:28

Abby Poms is a Respiratory Care Practitioner and Certified Clinical Research Professional with over 25 years of experience working in the field of …

Episode 69 - Liz Klings, MD

June 19th, 2017

8:24

Dr. Elizabeth Klings is an Associate Professor of Medicine and the Director of the Center for Excellence in Sickle Cell Disease at Boston University …

Episode 68 - Peter Leary, MD

June 15th, 2017

8:57

Dr. Peter Leary is a specialist in pulmonary and critical care medicine who cares for patients with pulmonary hypertension. Dr. Leary is focused on …

Episode 67 - Donna Head

June 12th, 2017

3:12

Pulmonary hypertension patient Donna Head was diagnosed with PH before any treatments were available. Donna, a former nurse, discusses how living …

Episode 66 - Tilman Humpl, MD

June 8th, 2017

4:54

Dr. Tilman Humpl is the Director of the Pulmonary Hypertension Service at the Hospital for Sick Children in Toronto, which is part of the Pediatric …

Episode 65 - Demos Papamatheakis, MD

June 5th, 2017

4:38

Demosthenes (Demos) Papamatheakis, MD is a board-certified pulmonologist and intensive care specialist from UC San Diego. Dr. Papamatheakis …

Episode 64 - Raymond Benza, MD

June 1st, 2017

4:54

Dr. Raymond Benza is a cardiologist in Pittsburgh, Pennsylvania and is affiliated with multiple hospitals in the area, including Alle-Kiski Medical …

Episode 63 - Thekla McGinley

May 29th, 2017

4:42

Pulmonary Hypertension patient, Thekla McGinley shares her story. Thekla discusses her frustration in getting a proper PH diagnosis and the …

Episode 62 - Michelle Figueras

May 25th, 2017

2:37

Like many pulmonary hypertension patients, Michelle Figuras’ journey to a confirmed diagnosis took several years. She began experiencing unusual …

Episode 61 - Jas James

May 22nd, 2017

2:45

Jas James is a pulmonary hypertension patient and long-term survivor from Canada. She discusses the moment she realized there was something more …

Episode 60 - Christine Liles

May 18th, 2017

4:28

Pulmonary hypertension patient Christine Liles lives on oxygen 24/7.  She was born with serious heart and breathing problems along with scoliosis. …

Episode 59 - James Hazlett

May 15th, 2017

4:15

Pulmonary hypertension and scleroderma patient Jim Hazlett is a proud member of the PH Men's PHight Club. Jim discusses the importance of early …

Episode 58 - Denneys Niemandt

May 11th, 2017

16:35

Denneys Niemandt is a pulmonary hypertension patient and PH global leader from South Africa. Denneys was instrumental in establishing The Pulmonary …

Episode 57 - Diego Gil

May 8th, 2017

3:33

Diego Gil is a pulmonary hypertension patient as well as the President of Asociación Tejido Azul, the largest non-profit PH organization in Colombia. …

Episode 56 - Anne Jung

May 4th, 2017

6:22

Anne Jung is pulmonary hypertension patient from Spain. She shares her CTEPH diagnosis story and discusses the advent of World Pulmonary Hypertension …

Episode 55 - Hall Skåra

May 1st, 2017

12:05

Hall Skåra is a pulmonary hypertension patient from Norway. He became part of PHA Europe’s staff after his diagnosis. He has helped develop their …

Episode 54 - Marina and Jovica: Inspired by Hope

April 27th, 2017

6:34

Marina Lazić and Jovica Spajić are two Serbian Ultra Marathon runners. Their Inspired by Hope team was established by the Association of Serbian PH patients, knowing that finding a cure starts with raising public …

Episode 53 - Arina Ševirjova

April 24th, 2017

3:07

Arina is a newly diagnosed pulmonary hypertension patient from Latvia. She was diagnosed less than 30 days ago. Arina discusses what led to her PH …

Episode 52 - Robyn Doyle

April 20th, 2017

5:23

Robyn Doyle is a full-time Caregiver to her daughter Bridget. She shares her PH story from Australia. Robyn shares why she’d like to be able to …

Episode 51 - Oksana Kulish

April 17th, 2017

7:59

Oksana Kulish is the founder of the Pulmonary Hypertension Association in Ukraine. (PHURDA). She discusses Ukraine’s limited access to therapies and …

Episode 50 - Pisana Ferrari

April 13th, 2017

13:23

Pisana has been active in patient advocacy for 15 years, since 2001, when she and other patients suffering from pulmonary arterial hypertension …

Episode 49 - Morgan Nuchols

April 10th, 2017

2:22

April is CDH Congenital Diaphragmatic Awareness Month. The International Day of Congenital Diaphragmatic Hernia Awareness is April 19th. Pulmonary …

Episode 48 - Haley Lynn

April 6th, 2017

9:54

Diagnosed at eighteen, Haley has made it a lifetime goal to educate on her rare lung disease, pulmonary hypertension, and often ignored brain and …

Episode 47 - Stuart Berwick

April 3rd, 2017

12:12

Long-term survivor, Stuart Berwick shares his story on the 16th anniversary of his pulmonary hypertension diagnosis. Stuart is also a cancer survivor …

Episode 46 - Amanda Spurling

March 30th, 2017

5:15

Amanda Spurling lives with a very rare disease called pulmonary hypertension. She frequently VLOGs to raise PH awareness and discusses how PH impacts …

Episode 45 - Liz DeVivo

March 27th, 2017

14:08

In 2000, Liz DeVivo was diagnosed with Scleroderma, a rare and chronic autoimmune disease. The disease attacked her internal organs, causing …

Episode 44 - Pam Kehoe

March 23rd, 2017

2:44

CTEPH patient, Pam Kehoe is a member of the CTEPH Advisory Board (www.CTEPH.com) She discusses her diagnosis and how it was confirmed only after …

Episode 43 - Ian Adatia, MD

March 20th, 2017

6:32

Dr. Ian Adatia has spent the last 25 years helping to improve care for babies, children and young people with pulmonary vascular disease. He is a …

Episode 42 - Kathleen Sheffer

March 16th, 2017

13:38

For former PH patient, Kathleen Sheffer, writing has become a tool for her to process her heart-lung transplant and the events leading up to it. …

Episode 41 - Betty Lou Wojciechowski

March 13th, 2017

19:40

Betty Lou “Wojo” is a retired school teacher who lost her husband Jerry and two children (Michael and Matthew) to Pulmonary Arterial Hypertension …

Episode 40 - Jody Petry

March 9th, 2017

4:56

Jody Petry is not just a pulmonary hypertension patient, but she is also a caregiver to her daughter, who suffers from this rare, chronic illness.

Episode 39 - Sound Bath Guided Meditation

March 6th, 2017

27:11

In this episode, Eric Mellgren and Jennifer Schaefer discuss and perform a Sound Bath Guided Mediation. A Sound Bath is a form of guided meditation that can help relieve anxiety and stress. The vibrations and tones are …

Episode 38 - UCSF's CPVD Conference

March 2nd, 2017

5:33

Over the past decade, great strides have been made in the understanding of the pathobiology of pulmonary vascular disease, and from these findings …

Episode 37 - Patricia Weltin

February 27th, 2017

7:08

Patricia Weltin is the founder of The Rare Disease United Foundation (www.rarediseaseunited.org), a non-disease specific, community-based organization, working at a state-level on legislation that has a direct impact on …

Episode 36 - Jacqueline R. Szmuskovicz, MD

February 23rd, 2017

4:31

Dr. Szmuszkovicz works in Los Angeles, CA and specializes in Pediatric Cardiology. She provides comprehensive care to patients with cardiovascular …

Episode 35 - Kim M. Kerr, MD

February 20th, 2017

6:17

Kim M. Kerr, MD, is a board-certified pulmonologist. Her clinical and research interests are in chronic thromboembolic pulmonary hypertension (CTEPH) …

Episode 34 - Roham T Zamanian, MD

February 16th, 2017

5:27

Dr. Zamanian is the Director of the Adult Pulmonary Hypertension (PH) Program at Stanford University Medical Center. He currently directs the Vera …

Episode 33 - Jeff Fineman, MD

February 13th, 2017

6:39

Dr. Jeffrey Fineman is a pediatric critical care specialist, or intensivist, and the division chief of Critical Care at UCSF Benioff Children’s …

Episode 32 - Dunbar Ivy, MD

February 9th, 2017

9:00

Dunbar Ivy, MD is currently the Section Head of Pediatric Cardiology and the Director of the Pediatric Pulmonary Hypertension Program at the …

Episode 31 - Steven Abman, MD

February 6th, 2017

7:49

Dr. Steven Abman is Professor of Pediatrics and Director of the Pediatric Heart Lung Center (PHLC) at the University of Colorado Denver Anschutz …

Episode 30 - Mark Nicolls, MD

February 2nd, 2017

10:52

Dr. Mark Nicolls specializes in the treatment of lung transplant patients. He has practiced pulmonary and critical care medicine for more than 18 …

Episode 29 - Lisa Raulston

January 30th, 2017

4:48

PH patient Lisa Raulston shares her pulmonary hypertension story and how persistence and research led her from misdiagnosis to ultimately discovering …

Episode 28 - Candy Morehouse

January 26th, 2017

4:35

PH patient, Candy Morehouse shares her amazing story of a bypass surgery that led to a pulmonary hypertension diagnosis after spending 26 days in a …

Episode 27 - Billie Keith

January 23rd, 2017

9:34

Billy Keith is a mother on a mission. She discusses her daughter Brooke's road to a pulmonary hypertension diagnosis, why Dr. Robyn Barst is her …

Episode 26 - Bill O'Donnell

January 19th, 2017

6:04

Boston native, Bill O'Donnell discusses the 15+ year journey his daughter Shannon has had with pulmonary hypertension. Bill shares his thoughts on …

Episode 25 - Debbie Crandall

January 16th, 2017

5:08

PH patient, Debbie Crandall discusses the power of positivity, why pulmonary hypertension awareness is so important and why she is an eternal …

Episode 24 - Marcie McGregor

January 12th, 2017

4:20

PH patient Marcie McGregor shares her pulmonary hypertension diagnosis story. Marcie discusses the importance of a strong support system and how …

Episode 23 - Michael Bonar

January 9th, 2017

4:48

Pulmonary hypertension patient Michael Bonar discusses his diagnosis that stemmed from an incident during high school band practice and how he is his …

Episode 22 - Jennica Clasby

January 5th, 2017

5:26

Pediatric pulmonary hypertension caregiver, Jennica Clasby shares her family's story. Jennica discusses the challenges of moving across country to …

Episode 21 - Nicole Dempsey

January 2nd, 2017

4:45

Canadian Nicole Dempsey is an awareness ambassador for PHA Canada. Diagnosed with pulmonary hypertension only a few years ago, Nicole describes the …

Episode 20 - Lynn Bastian

December 29th, 2016

5:15

Lynn Bastian is a long-term pulmonary hypertension survivor. Though she was diagnosed over ten years ago, Lynn discusses how she continues to learn …

Episode 19 - Kalena Sawyer

December 26th, 2016

4:52

Pulmonary hypertension patient, Kalena Sawyer is always spreading the word about her rare, life-threatening illness. Because PH is an invisible …

Episode 18 - Lindsey and Josh Belt

December 22nd, 2016

6:35

In January of 2013, Lindsey and Josh Belt’s 5 year-old son Joel was diagnosed with a severe lung disease called idiopathic pulmonary hypertension …

Episode 17 - Jenn Lalonde

December 19th, 2016

2:26

Canadian pulmonary hypertension patient, Jenn Lalonde discusses her road to diagnosis, the need for PH awareness and how she is using writing as a …

Episode 16 - Gary Bruce

December 15th, 2016

9:40

Pulmonary hypertension and COPD patient, Gary Bruce discusses how PH has impacted his life. Gary finds strength through his faith and through the …

Episode 15 - Arlene Shuler

December 12th, 2016

4:39

CTEPH patient Arlene Shuler shares her pulmonary hypertension diagnosis story which started as breathlessness in 2005. Arlene is a dancer and …

Episode 14 - Jenny Janzer

December 8th, 2016

10:36

Long term survivor Jenny Janzer shares her pulmonary hypertension diagnosis story and how she has battled depression in her tween and teen years …

Episode 13 - Omar and Javier Estevez

December 5th, 2016

8:45

Twin brothers, Omar and Javier Estevez describe how they contracted pulmonary hypertension in the aftermath of 9-11. After their diagnosis they found …

Episode 12 - Gerry Fischer

December 1st, 2016

9:50

At the age of three, Gerry Fischer’s daughter Maleen was diagnosed with pulmonary hypertension and, as there was no treatment for this fatal disease …

Episode 11 - David Grady

November 28th, 2016

6:29

Pulmonary Hypertension patient, David Grady is a retired police officer from Ohio. Because he lives along, David describes the importance of being …

Episode 10 - Patricia Harrington

November 24th, 2016

3:31

Patricia Harrington is a long-term pulmonary hypertension survivor. Patricia discusses how she has battled her rare, life-threatening diagnosis by …

Episode 9 - Cynthia Sandoval and Sylvia Lakalaka

November 21st, 2016

8:52

Sisters Cynthia Sandova and Sylvia Lakalaka describe the difficult road that led to Sylvia’s pulmonary hypertension diagnosis. They discuss their …

Episode 8 - Greg Fuller

November 17th, 2016

6:14

He used to climb mountains, but now CTEPH patient Greg Fuller is being forced to set new goals for himself because of his rare illness. Though life …

Episode 7 - Margaret Owens

November 14th, 2016

5:05

CTEPH patient Margaret Owens shares her pulmonary hypertension diagnosis story and how he life changed after she received a V/Q Scan and surgery to …

Episode 6 - Tara Suplicki

November 10th, 2016

5:55

Pulmonary hypertension patient Tara Suplicki was misdiagnosed with “exercise induced asthma” for twenty years. Two decades later, Tara has become a …

Episode 5 - Deloris and Rick Peacy

November 7th, 2016

9:03

Deloris and Rick Peacy have been married for over 40 years. The Peacy’s are support group leaders from Arkansas who don’t let Delores’ diagnosis stop …

Episode 4 - Jim White, MD

November 3rd, 2016

3:13

R. James White, MD, PhD from University Rochester Medical Center talks about his 15 year career treating pulmonary hypertension, the importance of PH …

Episode 3 - Danijela Pešić

October 31st, 2016

5:30

Danijela Pešić, founder of PH Serbia, was diagnosed with pulmonary hypertension as a baby over 38 years ago. Danijela is dedicated to raising PH …

Episode 2 - Kevin Lee Burger

October 27th, 2016

7:54

Kevin Lee Burger shares his story about being diagnosed with pulmonary hypertension, the importance of PH awareness and the reasons that led him to …

Episode 1 - Andrew Sagraves

October 24th, 2016

4:23

10-year-old pulmonary hypertension patient, Andrew Sagraves shares his story. Andy discusses living a life of compromise, theoretical physics and how …

Trailer 3 - Become #phaware

September 7th, 2016

2:07

A new podcast series from phaware global association devoted to raising global pulmonary hypertension and rare disease awareness with dynamic stories …

Trailer 2 - The #phaware Conversation

September 7th, 2016

2:07

A new podcast series from phaware global association devoted to raising global pulmonary hypertension and rare disease awareness with dynamic stories …

Trailer 1 - Are you #phaware?

September 7th, 2016

2:07

A new podcast series from phaware global association devoted to raising global pulmonary hypertension and rare disease awareness with dynamic stories …

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