Cover art for podcast HAE Speaks

HAE Speaks

35 EpisodesProduced by US HAEAWebsite

HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the r… read more

35 Episodes | 2020 - 2023

Episode 34: A Newly Diagnosed Perspective

January 31st, 2023

24:47

Kayla, an individual with HAE, shares her perspective on being recently diagnosed with HAE, advocating for herself, and her journey to a diagnosis.


For more information about Hereditary Angioedema please visit HAEA.org

Episode 32: HAEA year in review

January 9th, 2023

46:39

In this episode of the HAE Speaks podcast, the HAEA staff talks about their accomplishments in 2022. Listen now to hear what resources are available!


For more information about Hereditary Angioedema please visit

Episode 31- Jess shares the importance of Advocating for HAE

November 1st, 2022

13:17

In this episode of the HAE Speaks podcast, Jess talks about the importance of advocacy and how you can get involved.


For more information about …

Episode 30- Adina's HAE journey

October 6th, 2022

17:19

In this episode of the HAE Speaks podcast we hear from HAEA staff member Adina.  Adina shares her HAE journey from diagnosis to today.


For more information about Hereditary Angioedema please visit HAEA.org

Thank you to …

Episode 29- Bobbi shares her journey with HAE

September 7th, 2022

15:28

In this episode Bobbi shares her journey with HAE as a person diagnosed with HAE, turning into also a caregiver, and how her and her girls are living a great life with HAE.


For more information about Hereditary …

Orladeyo: Red shares his HAE journey

August 23rd, 2022

11:47

A message from our Sponsor: BioCryst Pharmaceuticals:

In this episode of the HAE Speaks podcast, we listen to Red share his experience with HAE and preventing attacks with ORLADEYO® (berotralstat), the once daily oral …

Episode 28- Troyce provides tips about going back to school

August 1st, 2022

9:38

In this episode of the HAE Speaks podcast, Troyce provides tips about going back to school while having HAE. Troyce provides insight at each level of …

Episode 27- Abby shares her insights about the HAEA Brady Club

July 1st, 2022

8:26

In this episode of the HAE Speaks podcast, we listen to Abby share her experience and excitement about being a part of the HAEA Brady club.

For more information about Hereditary Angioedema please visit HAEA.org

Thank …

Episode 26- Missy & Sarah discuss the 2022 HAE IN-MOTION®

May 31st, 2022

12:23

The 2022 HAE IN-MOTION® - Step it up for HAE virtual challenge registration is open.  In this episode, hear tips, tricks, and advice from a past participant. Register now at HAEA.org.  For more information about …

Episode 25- Lisa & Mike share information about HAE day :-) 2022

May 5th, 2022

19:26

Lisa and Mike tell us about the 2022 HAE day :-) campaign. Register now at HAEA.org.  For more information about Hereditary Angioedema please visit HAEA.org

Thank you to our sponsors:

BioCryst Pharmaceuticals

BioMarin

Episode 24- Aysha shares her HAE journey

April 1st, 2022

25:43

Aysha shares her story of living with HAE and describes her journey of finding a diagnosis.

For more information about Hereditary Angioedema please visit HAEA.org

Thank you to our sponsors:

BioCryst Pharmaceuticals

Episode 23- Troyce provides tips about insurance in 2022

February 28th, 2022

6:22

Troyce, an HAEA Health team member, provides information and tips about insurance in 2022.

For more information about Hereditary Angioedema please visit HAEA.org

Thank you to our sponsors:

BioCryst Pharmaceuticals

Episode 20- HAEA Year in Review

January 28th, 2022

26:07

The Hereditary Angioedema Association continues to be the galvanizing force advocating and supporting the HAE community.  In this episode, the HAEA staff provides a review of 2021 programs and accomplishments.


For more …

Episode 22- Bobbi shares her HAE journey

January 28th, 2022

6:22

Bobbi shares her story of living with HAE and describes how the  evolution of treatments has vastly improved over the years.

For more information …

Episode 21- HAEA Meet and Greet Events

January 3rd, 2022

7:33

In this episode, Mike and Missy discuss HAEA Meet and Greet events, and answer some important questions.  What is an HAEA Meet and Greet?  Who should …

Episode 19- Jenny's HAE Journey

October 27th, 2021

35:16

Jenny talks about how she handles having HAE and putting herself first when she is not having the best of days. Jenny is a huge advocate of self care, especially as a person living with a rare disease.

For more …

Episode 18- Christine and Mike: Capitol Hill Campaign

October 4th, 2021

17:54

In this episode Christine and Mike discuss the US HAEA Virtual Capitol Hill Campaign and the importance of advocating for the HAE.

For more …

Episode 17- Antonio and Jack: HAEA DIY events

August 30th, 2021

9:09

In this episode of the HAE speaks podcast Antonio and Jack talk about their DIY event. They discuss how the idea started and their game plan to make the event a success.

For more information about Hereditary Angioedema …

Episode 16: Sonia's HAE Journey

July 30th, 2021

15:18

In this episode of HAE Speaks podcast Sonia discusses her journey with HAE and how much life has changed since diagnosis.

For more information about Hereditary Angioedema please visit HAEA.org

Thank you to our sponsors:

Episode 15: Lisa: HAE IN-MOTION®

June 30th, 2021

11:06

Lisa talks about the HAE IN-MOTION® Event that she and her family participate in.  Enjoying walks together as a family, and entering in the weekly photo contest.  Also, Lisa talks about promoting the event on Facebook.


Episode 14: Chaeli: HAE and Travel

May 28th, 2021

12:30

Chaeli discusses traveling with HAE. She talks about how she prepares to travel by car and plane.


For more information about Hereditary Angioedema please visit HAEA.org

Thank you to our sponsors:

BioCryst …

Episode 13: Lisa: HAE events

May 4th, 2021

19:00

In this episode of HAE Speaks, Lisa talks about how Team Jack started. Lisa also discusses all of the DIY HAE events Team Jack hosts and attends each year.


For more information about Hereditary Angioedema please visit

Episode 12: Jess's HAE Journey

April 6th, 2021

25:08

Episode 12 is hosted by Jess, an HAE patient and HAEA team member. She talks about her journey through diagnosis, her experience traveling abroad, …

Episode 11: HAE and Education

March 1st, 2021

25:08

In this episode, Missy, Marti and Marna talk about speaking with your children’s school and teachers of their HAE diagnosis. As mothers of children …

Episode 10: Hannah's HAE Journey

February 1st, 2021

9:15

Hannah C., an HAE patient, and HAEA team member, talks about her HAE journey, including growing up with an HAE diagnosis, attending school, and …

Episode 9: HAE and pregnancy

January 4th, 2021

6:51

Stephanie speaks with Missy about her HAE journey during her pregnancies.

For more information about Hereditary Angioedema please visit HAEA.org

Thank you to our sponsor

Ionis Pharmaceuticals

Episode 8: 2020 Team HAEA

November 29th, 2020

27:08

As you may already know, the HAEA has adapted to the uncertainty provoked by the COVID-19 pandemic by swiftly transitioning our 2020 scheduled …

Episode 7: HAEA Support

November 2nd, 2020

12:10

In this episode of HAE Speaks we connect with Marna and Adina to learn more about the HAEA Support Groups.

Episode 6: Advocating for HAE

September 21st, 2020

7:54

Linda P. provides insight to her HAE journey and tips about creating HAE awareness.

Episode 5: Road to Treatment

August 21st, 2020

12:26

Michael G. shares his road to treatment and overcoming his fear of needles.

Episode 4: Life before and after an HAE diagnosis of a child.

August 3rd, 2020

16:23

Episode 4 - Mandy is a mother and caregiver to her son, Luke.   Listen as Mandy shares a part of their journey,  life before and after an HAE diagnosis of a child.

Episode 3: Ongoing Research for New HAE treatments.

July 3rd, 2020

13:29

Tony Castaldo, CEO of the HAE Association provides an information packed update on the new HAE treatments that are being developed by 9 companies. Tune in to this  podcast for the latest exciting details about this …

Episode 2: COVID interviews

June 2nd, 2020

27:47

Missy interviews an HAE patient, caregiver and two Brady Club youngsters about COVID. Each of them with great ideas and tips during this time.

Episode 1: Life as a Caregiver (Missy M.)

May 1st, 2020

15:10

Episode 1

HAE Speaks Podcast: 

Missy M. shares a glimpse into her life as an HAE caregiver for her husband Mike.  

For more information about HAE and the US Hereditary Angioedema Association please visit HAEA.org

What is HAE?

May 1st, 2020

2:27

A brief overview of HAE and the Hereditary Angioedema Association.

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