Filière de santé maladies rares Immuno-hématologiques MaRIH
Les Filières de Santé Maladies Rares (FSMR) ont été créées suite à l’appel à projet du Ministère de la Santé lancé en 2013. Le principal rôle de ces FSMR est d’animer et de coordonner les actions entre les différents acteurs impliqués dans la prise en charge de maladies rares : médecins cliniciens, … read more
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Présentation de l'association de patients atteints de déficits immunitaires primitifs "IRIS"
Présentée par Virginie Milière, déléguée générale de l'association
Pour en savoir plus : http://www.associationiris.org/
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