End-of-Life University

Learn how this non-profit organization is working to solve gaps in end-of-life care in their community.

My guests Elizabeth Johnson and Erin Collins are the founders and creators of the non-profit Peaceful Presence Project with a mission of helping communities live well, age well and die well by reimagining the way we talk about, plan for and experience the last stage of life. They have created Endnotes, a roadmap for end-of-life planning an will discuss the genesis of their organization and how they take a community-based approach in their work by meeting the gaps that exist in end-of-life care. Learn more at their website:

www.the peacefulpresenceproject.com

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This episode includes:

• How Elizabeth and Erin were inspired to start this organization
• The Compassionate Communities model of care that informs their work
• The importance of integrating palliative care into daily life
• How to reclaim deathcare as a social event with a medical component
• Surveying the community for strengths and weaknesses around end-of-life issues to determine areas of need
• Thoughts on improving the medical model to move from a curative focus to a healing focus by increasing education around palliative and end-of-life care
• Reasons why our advance care planning has not been “successful” so far
• High quality conversations about EOL choices are essential and they should start outside of healthcare first
• Why advance care planning is important for those experiencing homelessness
• The needs for increased access to palliative care in rural communities
• Exploring who is too poor to die well

Links mentioned in this episode:

• Register for Q&A with Becky Aud-Jennison
• Compassionate Communities website
• Geripal podcast on advance care planning
• Compassionate Presence Workshop

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